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Physical Comfort During the Day: Pain from MD
Muscular dystrophy affects every part of the body. Understanding muscular dystrophy pain versus other pain from something else can be tricky. Do not ignore pain, your body is trying to send you a message that something is wrong.
How do you define and identify pain from muscular dystrophy? Have you had any assessments from specialist how to manage daily pain caused by MD? How have you tried to manage your pain yourself, without medicine? What pain do you have from your muscular dystrophy that affects your routine?
Personally, when I go to class, which can be 3 hours long, I find my shoulders, neck, and lower back start to hurt because I don’t have a strong core. I slouch, then lean and eventually just suffer through or if we get out early I go home and have to lay down. I do not want to get a shoulder support because I don’t want my body to become to reliant and weaker from it. I think if I could have one that easily comes on and off for me then I would use in time of serious pain or if I need a break.
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