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Danielle "Dani" Liptak started the topic Safety and Security in Your Home in the forum Muscular Dystrophy Tips, Tricks and Advice 1 day, 23 hours ago
As a person with a physical disability, I believe it can be challenging to feel safe and sometimes secure, depending on the situation. For example, in my home, we have an alarm system with a panic button. We also have a dog that barks if someone comes to the door. Also, if someone does come to the door, we have a Ring doorbell that records sound…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 5 days, 18 hours ago
Denis, that description of your home in Belgium sounds lovely! Dogs and falling leaves are some of my favorite things! I hope you have a good weekend!
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Danielle "Dani" Liptak posted a new activity comment 5 days, 18 hours ago
My physical therapists told me if I ever use a back brace, it should not be for extended periods because it could cause me to become weaker in the long run by relying on it too much!
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Danielle "Dani" Liptak posted a new activity comment 5 days, 18 hours ago
I will add Mind Hunters on Netflix was great!
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Danielle "Dani" Liptak started the topic Parking Tickets in the forum Adults With Muscular Dystrophy 6 days, 13 hours ago
Recently I had to work in a store downtown for a full day. The city that I live in has street parking and garage parking. I usually do street parking as it is closer to the store I work at and for my ramp if there are no available, accessible spaces in the garage. However, I received a parking ticket for parking over the white line. I feel like…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 1 day ago
That is one thing I noticed in sex toys, at least the ones I have been to, that they are very professional. I understand the stigma and embarrassment some people associate with sex. Still, I hope if anyone has been thinking about going, they do, the employees take their jobs seriously, and as always, I recommend reading reviews about the place…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 2 days ago
Oh yeah! If I try to catch something falling or pick up something too heavy, I feel that pain you’re referring to in your post!
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Danielle "Dani" Liptak posted a new activity comment 1 week, 2 days ago
Welcome, Gloria! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 2 days ago
Welcome, Walt. My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or…[Read more]
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Danielle "Dani" Liptak started the topic Muscle Cramps/Spasms in the forum Diagnosis Information and General Questions 1 week, 5 days ago
Do you get muscle cramps or spasms? What causes yours to occur? What has been the best treatment for relieving muscle cramps or spasms?
I know I get them when I have dehydration, strenuous movement, or lack of muscle use. For instant relief in the middle of the night, I massage and stretch. I also will eat a pickle or drink pickle juice because…[Read more]
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Danielle "Dani" Liptak started the topic Eating Lunch at School in the forum Young Adults with Muscular Dystrophy 2 weeks ago
If you have difficulty carrying a food tray or cutting food, do you have someone who will help you? Do you have friends that just take charge and help you out? Do you prefer to wait and eat when you get home? How do you handle the lunchroom if you have difficulty walking but do not use a mobility device yet?
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Danielle "Dani" Liptak posted a new activity comment 2 weeks ago
Do generators work in blackouts?
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Danielle "Dani" Liptak started the topic October 2021 Activities in the forum Mental Health and Positivity 2 weeks, 2 days ago
In the United States, many attribute the month of October with Halloween. It can mean anything from pumpkin carving to scary movies with Halloween candy! What are your favorite fall/October activities? Do you like Halloween? Do you have kids that enjoy the holiday? What sort of things do you do that are accommodating with MD.
For example, when my…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 2 weeks, 2 days ago
Welcome, Lynn! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or…[Read more]
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Danielle "Dani" Liptak started the topic 30 Days of MD: Dream Big, Work Hard, Never Give Up in the forum 30 Days of MD 3 weeks, 1 day ago
Day 27 of 30 Days of MD is Scott Bisi’s story! Scott has always had big dreams, muscular dystrophy was a challenge at first, but he didn’t let that stop him from working in the automotive industry.
Here’s an excerpt: “I want others with muscular dystrophy to know that their dreams can always be achieved with hard work. Despite my physical l…[Read more]
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Danielle "Dani" Liptak started the topic 30 Days of MD: Giving Up is Not an Option in the forum 30 Days of MD 3 weeks, 5 days ago
The topic for day 23 of 30 days of MD is about not giving up. Angélica Ramírez just turned 23 years old. She is a writer and a medical student.
Here’s an excerpt: “I do not contemplate the…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 4 weeks ago
Welcome, Denis! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 4 weeks ago
Welcome, Ross! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 4 weeks ago
Welcome, Aman! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or…[Read more]
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Danielle "Dani" Liptak started the topic 30 Days of MD: Hope Is a Powerful Weapon Against Duchenne in the forum 30 Days of MD 4 weeks ago
Day 21 of 30 Days of MD’s story is Betty Vertin. She lives in Nebraska with a big family. Three of her sons are living with Duchenne muscular dystrophy (DMD). Their names are Max, 15, Rowen, 12, and Charlie, 10.
The boys are living full lives. Our oldest is an active high school student participating in theater and music, and held down a summer…[Read more]
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Reading reviews is good advice especially if you want to know if the store is wheelchair accessible. The first one I went to wasn’t. Also checking out their online store beforehand could be helpful as well to figure out what you’re looking for and the options they have available.