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Danielle "Dani" Liptak started the topic 30 Days of MD: Allie Schmidt in the forum Adults With Muscular Dystrophy 2 days ago
Check out Allie’s story about parenting with MD.
How is having MD and parenting affected your life? Have you been able to find a balance and ask for help when needed?
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Danielle "Dani" Liptak started the topic 30 Days of MD: Noelle Grace in the forum Adults With Muscular Dystrophy 2 days ago
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Danielle "Dani" Liptak posted a new activity comment 5 days ago
Welcome, Jeff! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Danielle "Dani" Liptak started the topic 30 Days of MD: Kae Tran in the forum Adults With Muscular Dystrophy 6 days ago
Today’s 30 Days with MD topic is Empowerment and Perspective With LGMD2B.
Check out Kae’s story here, and follow us for more on @MDNewsToday.
How has living with MD changed your perspective of the world, your life, and what you value?
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Danielle "Dani" Liptak posted a new activity comment 6 days ago
Welcome, Stephen! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Danielle "Dani" Liptak replied to the topic MDA Telethon Hosted By Kevin Hart in the forum Muscular Dystrophy Awareness 6 days, 21 hours ago
Thank you so much for sharing your struggles and your strength! I hope someday maybe you can form your own MD support group where you live. It is important to have that connection. I think it is wonderful that you use social media to stay connected and to share your musical passion!
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Danielle "Dani" Liptak started the topic 30 Days of MD: Joe Logue in the forum Adults With Muscular Dystrophy 6 days, 21 hours ago
Day 23 of 30 days of MD, we have Joe with his topic about having Becker’s MD and being a father.
Check out his story here and follow along on @MDNewsToday on Instagram.
Can you relate to Joe’s story as a parent with MD? How have you dealt with the stress that comes along with being a parent that has MD?
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Danielle "Dani" Liptak posted a new activity comment 6 days, 21 hours ago
Welcome, Brian! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Danielle "Dani" Liptak started the topic 30 Days of MD: Cassie in the forum Adults With Muscular Dystrophy 1 week, 1 day ago
Cassie has been a counselor at MD camp for 7 years.
Have you been to camp, MD camp, or a different one? Were you ever a camp counselor?
Read Cassies’ story here and follow us on @MDNewsToday for more stories!
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Danielle "Dani" Liptak started the topic 30 Days of MD: Tali in the forum Adults With Muscular Dystrophy 1 week, 1 day ago
Tali talks about what it was like to accept having to use a wheelchair for the first time.
How did you feel when you first got your mobility device?
Read Tali’s story here and follow us on @MDNewsToday
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Danielle "Dani" Liptak started the topic 30 Days of MD: Jenna Milidan in the forum Adults With Muscular Dystrophy 1 week, 4 days ago
Day 18 of 30’s topic is outdoor and MD. Jenna was diagnosed her junior year with muscular dystrophy resulting from a new gene mutation variant that her doctors had never seen before. Jenna loves the outdoors and horseback riding. She has pursued her degree in environmental biology and will go on to a master’s program for environmental science.
Do…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 4 days ago
The last time I went in for an endoscopy, they stretched my esophagus. I don’t know how and it sounds interesting, but that was to help with acid reflux, but I noticed it was easier to swallow after too.
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Danielle "Dani" Liptak posted a new activity comment 1 week, 4 days ago
Yes!! I have my old powerchair in my kitchen; I use it to clean my cats’ litter boxes! Also, I have taken it on the airplane with me because I was worried that my newer and more expensive chair would get damaged!
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Danielle "Dani" Liptak started the topic Voting and High Risk in the forum Coronavirus (COVID-19) and MD 1 week, 5 days ago
Voters with disabilities face different barriers than those without, especially barriers now due to COVID-19.
How will you be voting this year? In-person or by mail? Do you live in a nursing home or do not have someone to help you cast your ballot?
I have received my ballot and have mailed it already. I had my father take it to the mailbox for me.
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Danielle "Dani" Liptak started the topic 30 Days of MD: Melissa Soriano in the forum Adults With Muscular Dystrophy 1 week, 5 days ago
Day 17 of 30 Days of MD is about school and muscular dystrophy! Check out Melissa’s story here and follow us on Instagram @MDNewsToday!
Were you disabled with your MD in elementary, middle, high school, or university? What steps did you take to be included and educate others about your specific disability? Did you find that you and your family…[Read more]
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Danielle "Dani" Liptak started the topic 30 Days of MD: Becky Bandy in the forum Adults With Muscular Dystrophy 1 week, 6 days ago
Day 16 of 30 Days of MD is about love and MD. Becky has a genetic mutation of one gene that led to SMA & CMT tendencies. This has caused her to feel self-conscious about her body. After choosing to make an effort in her dating life she spent months on dating sites when she finally met her now-husband.
Check out her story here and follow us on…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 6 days ago
Welcome, NZ! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 6 days ago
Welcome, Frances! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 6 days ago
Welcome, Linda! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Danielle "Dani" Liptak posted a new activity comment 1 week, 6 days ago
I never use the term “special needs” I don’t have any particular reason not to use it, but for some reason, the sound of it bothers me. I kind of wish there was just one word to describe disability. Not special, not unique, not touched, not a handicap, and so on, only disabled.
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