-
Danielle "Dani" Liptak posted a new activity comment 1 day, 1 hour ago
Welcome, Gail! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or…[Read more]
-
Danielle "Dani" Liptak started the topic Expensive Medical Equipment in the forum Mobility Aids and Medical Equipment 1 day, 1 hour ago
I received a bill from Numotion for my Corpus M# powerchai, and it was $1200. To say I was shocked was an understatement. A month or so ago, I was told that I could use new casters and, with the age of my battery, a new one as well. I agreed to this, and after waiting for some time, they finally scheduled an appointment for me, and 30 minutes…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 1 day, 1 hour ago
Yes I have seen that they do this but it requires you to have a Costco membership and I know that can be too costly for some. It is great if you do, so I will look into it! Thank you so much for the reply!
-
Danielle "Dani" Liptak started the topic Public Transportation Post Covid-19 in the forum Coronavirus (COVID-19) and MD 1 week, 1 day ago
Have you used any forms of public transportation where you live since the pandemic? What was it like for you? I flew on an airplane in January, and everyone still had masks. I did not have my vaccine yet, and we were still very cautious. Now seven months later, I want to make travel plans, but I wonder what it will be like to share a public space…[Read more]
-
Danielle "Dani" Liptak started the topic Pandemic Fatigue in the forum Coronavirus (COVID-19) and MD 1 week, 1 day ago
Have you heard of “pandemic fatigue”? Pandemic fatigue is when people are tired of being cooped up due to restrictions on indoor gatherings outside the home. They are also tired of wearing masks, physically distancing, being away from family and friends, and increasingly fed up with the “new normal” routines. In the state and I live in, the Uni…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 1 week, 1 day ago
Welcome, Gregory! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 1 week, 1 day ago
Welcome, Ellen! I am Dani Liptak, a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any…[Read more]
-
Danielle "Dani" Liptak started the topic Sweating in Your Wheelchair in the forum Muscular Dystrophy Tips, Tricks and Advice 2 weeks ago
My powerchair has leather seats, and with hot summer temperatures, I have been trying to find a way to sit comfortably when outdoors. How do you handle the heat and sweating, especially if you sit on a mobility device? Do you have a special cushion? Where specific fabrics? Carry a towel with you at all times? What are some tips or advice do you…[Read more]
-
Danielle "Dani" Liptak started the topic People who are not vaccinated in the forum Coronavirus (COVID-19) and MD 2 weeks ago
If you received the COVID-19 vaccine and you meet someone who has not, how do you feel? I ask because where I live, anyone is eligible for the vaccine, and it is free. When I was younger, the flu shot was always encouraged by my school so everyone would get it, and it was free. Do you worry about being around people who are not vaccinated? Are you…[Read more]
-
Danielle "Dani" Liptak started the topic Other People's Anxiety in the forum Mental Health and Positivity 2 weeks ago
How do you handle other people’s anxiety? Do you live with someone who is anxious and in turn makes you anxious? Do you go to therapy? Have you talked to your therapist about this?
-
Danielle "Dani" Liptak started the topic Rain and Mobility Devices in the forum Muscular Dystrophy Tips, Tricks and Advice 2 weeks, 4 days ago
It has been raining where I live, and it has made going out somewhat difficult at times. I always try to carry a shower cap to cover my joystick, but sometimes I forget. What alternatives do you use to stay try in rain and stormy weather? How do you make it practical for you and convenient?
-
Danielle "Dani" Liptak posted a new activity comment 2 weeks, 4 days ago
Welcome, Donna! I am a moderator, along with Leah for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general questions…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 2 weeks, 4 days ago
Welcome, Milos! I am a forum moderator, along with Leah for the MD Forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general…[Read more]
-
Danielle "Dani" Liptak started the topic Pharmacy in the forum Muscular Dystrophy Tips, Tricks and Advice 2 weeks, 5 days ago
I had to go pick up medication today from the drive thru CVS in my neighborhood. I feel privileged having one so close by to fill my prescriptions and pick up other necessities if I need. I was wondering what pharmacies do you frequent? Is it solely for medication or do you get other items while there? Have you had accessibility issues when…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 3 weeks, 1 day ago
Welcome! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 3 weeks, 1 day ago
Welcome, Lawrence! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 3 weeks, 1 day ago
Welcome, Sahar! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 3 weeks, 1 day ago
Welcome, Barbara! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 3 weeks, 1 day ago
Welcome, Son Yin! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any…[Read more]
-
Danielle "Dani" Liptak posted a new activity comment 3 weeks, 1 day ago
Welcome, Amanda! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general…[Read more]
- Load More
