Muscular Dystrophy News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search

Danielle "Dani" Liptak

Home Members Danielle "Dani" Liptak
show less show more
Profile picture of Danielle "Dani" Liptak

@dani-liptak

Join the conversations on the forums! View
  • Activity
  • Profile
  • Friends 60
  • Groups 0
  • Forums
  • Articles
  • Media 0
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 4 days, 6 hours ago

    How are you, Philip?

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 4 days, 6 hours ago

    Have you found anything in particular that relieves the spasms? Medicine? Vitamins? Pool exercises? More rest?

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 4 days, 6 hours ago

    How did you feel when your doctor said that to you? I would think about that for a long time, probably go through many emotions, and have to talk to a professional about how I was feeling. But, incredibly, people do not know the power of their words. You were trying to get help with something, and instead, they say you are lazy when you have a…[Read more]

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 4 days, 6 hours ago

    Hey, Ralph! I hope all is well. Have you invested in a human lift, or have the falls lessened? I hope the latter!

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak replied to the topic Staying Postive/Uplifting Yourself After a Fall in the forum Mental Health and Positivity 4 days, 6 hours ago

    I think it is best if I don’t snap out of it right away and sit with it (pun intended). I believe nowadays in feeling what you feel in the moment but never letting it linger too long. “This too shall pass” is a motto I am trying to adopt.

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak started the topic Airplanes No Longer Require Masks. Are You Worried? in the forum Coronavirus (COVID-19) and MD 4 days, 6 hours ago

    <span style=”font-weight: 400;”>Delta, United, Southwest, and 18 other airlines no longer require passengers to wear masks on planes. Were you looking forward to traveling more but are now more worried about catching Covid? Do you think it was too soon, or are you ready to be rid of wearing masks? I can go either way. I have been in a state where…[Read more]

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 1 week ago

    Wow, a fourth shot! I understand because of your condition, but the side effects of the third one were so bad for me! I am glad it didn’t put you out of commission!

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 1 week, 3 days ago

    I always worry about the bathroom situation at one of my jobs, The building is old, and the accessible stall is not accessible. So I have to go across the street to a bar that opens in the early afternoon with an access le stall. It is a pain, but I do love the job. I just hope someday soon it will be made right.

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak started the topic Protein in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 week, 3 days ago

    There are many forms of protein for human consumption. Protein is found throughout the body—in muscle, bone, skin, hair, and virtually every other body part or tissue. The National Academy of Medicine recommends that adults get a minimum of 0.8 grams of protein for every kilogram of body weight per day or just over 7 grams for every 20 p…[Read more]

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 1 week, 5 days ago

    Hi, Larry. Thanks for the reply. I was wondering about your hand controls. Do you have to take a driving test for them? Are they similar to a joystick-like on a wheelchair or more a push and pull type apparatus?

    I understand getting out is difficult and for me going to a place by myself causes me anxiety, but I really would like to try and go…[Read more]

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 1 week, 5 days ago

    I have dropped my phone many times and even ran it over with my power chair, but the Otterbox has protected it. However, when it does fall on the ground because my phone is heavy, it can be challenging to use the grabber to pick it up, sometimes, it falls behind the bed, and I have to wait for someone to come by and pick it up for me. Also, I…[Read more]

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 1 week, 5 days ago

    Thank you for replying! Yes, reminding ourselves that we can’t control this disease but maybe control our responses to it. I sometimes wonder if I expect too much from able-bodied people in my life by wanting to join them in activities. A close group of friends went to an adventure camp for one of their birthdays, but I wasn’t invited, and I am…[Read more]

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 1 week, 5 days ago

    I had no idea that he had muscular dystrophy! I wonder if he kept it more private for fear of not being included in Hollywood? Or if that is why his voice sounded like that? (if it affects voice or strength of the voice) Thanks for sharing this.

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak started the topic Job Interviews/Public Speaking: Do you worry about people not understanding you? in the forum Adults​ ​With​ ​Muscular Dystrophy 2 weeks, 4 days ago

    If your muscular dystrophy affects the strength of your voice, or like me, FSHD affects my facial muscles, do you worry people will not understand you when they ask questions? Do you disclose this information before the interview, or do you go in and do your best.

    I don’t normally listen to myself talk on the phone or in videos. But, I saw a…[Read more]

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak started the topic Staying Postive/Uplifting Yourself After a Fall in the forum Mental Health and Positivity 2 weeks, 6 days ago

    Sometimes after a fall, I get down and stay down. I am usually upset with myself or the muscular dystrophy. I try to keep negative self-talk to a minimum, but anxiety can sometimes take over.

    After you fall, how do you make yourself feel better or not get into a sad state of mind? Do you allow yourself to feel bad for a little and then force…[Read more]

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak replied to the topic Breaking My People-Pleasing Habits With Self-Care in the forum Adults​ ​With​ ​Muscular Dystrophy 3 weeks, 5 days ago

    Hey Larry, I to enjoy staying in my room cocooned under my covers but I am also extroverted. I like hanging out with friends etc. Do you go out, do you live somewhere that has bars, parks, place to hang out alone or with friends? I’ve tried to go to restaurants and movies by myself more. What do you enjoy doing outside of your home? Is…[Read more]

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak replied to the topic The Dilemma With Deodorant and Skin Irritation in the forum Adults​ ​With​ ​Muscular Dystrophy 3 weeks, 5 days ago

    I’ve always used Old Spice because that’s what my dad used and I would end up taking his from him, haha.

    I’ve tried the more “organic” deodorants but I had irritation and it got expensive so I switched back to Old Spice. I guess if it isn’t broke don’t fix it!

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak started the topic Strangers with MD Reaching Out To You in the forum Mental Health and Positivity 3 weeks, 6 days ago

    Do you have social media? Have people with either your specific MD or any MD reached out to you and asked you for help? What sort of help did they ask for from you? Did you feel uncomfortable or open to help?

    I recently found a message in my inbox from a young woman desperately seeking answers that I feel like I could not entirely give her. She…[Read more]

  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 4 weeks ago

    Have you ever had to use it, and what was the situation? There are times when I have wondered if I need something, but usually, I am with friends or family. I have a taser in my amazon shopping cart, haha. People need to check with their state’s laws to see what they can carry for protection.

    View Conversation
  • Profile picture of Danielle "Dani" Liptak

    Danielle "Dani" Liptak posted a new activity comment 4 weeks ago

    What are your Vitamin D pills like, some people with MD have a hard time swallowing? I have heard of some patches, liquids, and chewable tablets. Have you tried any of these or prefer one over the other?

    View Conversation
  • Load More
Profile Photo Timothy Reed Profile Photo Tanveer

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Airplanes No Longer Require Masks. Are You Worried? by Danielle “Dani” Liptak
  • Healthy Doesn’t Look One Way by Leah Leilani
  • Getting a Second COVID-19 Booster Shot by Leah Leilani
  • Protein by Danielle “Dani” Liptak
  • Basic Assistance During Your Work Shift by Leah Leilani

Recent Replies

  • Staying Postive/Uplifting Yourself After a Fall
  • Omicron, are you worried?
  • Breaking My People-Pleasing Habits With Self-Care
  • Breaking My People-Pleasing Habits With Self-Care
  • Actor and Comedian, Gilbert Gottfried’s Passing

Members

Newest | Active | Popular
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 3 hours, 32 minutes ago
  • Profile picture of Paige Fruge
    Paige Fruge
    Active 17 hours, 15 minutes ago
  • Profile picture of Joe Pierce
    Joe Pierce
    Active 3 days, 3 hours ago
  • Profile picture of Larry
    Larry
    Active 3 days, 4 hours ago
  • Profile picture of Danielle "Dani" Liptak
    Danielle "Dani" Liptak
    Active 4 days, 6 hours ago

Forums

  • Coronavirus (COVID-19) and MD
  • Muscular Dystrophy Awareness
  • 30 Days of MD
  • Adults​ ​With​ ​Muscular Dystrophy
  • Clinical Trials
  • Member Spotlight
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Muscular Dystrophy Events And Activities
  • Mental Health and Positivity
  • Mobility Aids and Medical Equipment
  • Muscular Dystrophy ​and​ ​Dating/Relationships
  • Muscular Dystrophy Parents and Caregivers
  • Muscular Dystrophy Tips, Tricks and Advice
  • Using our forums
  • Young Adults with ​Muscular Dystrophy
  • Most popular topics
  • Topics with no replies

Muscular Dystrophy News Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Recent Posts

  • Why Pool Therapy Is Part of Our Care Plan
  • Organizations Rally to Help Ukrainian Rare Disease Patients
  • Three DMD Gene Therapy Programs Terminated by Astellas, Citing Data

Disclaimer:

Muscular Dystrophy News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account