Danielle "Dani" Liptak

If you have allergies, a cold, the flu, especially during this pandemic, how have you coughed and sneezed around others? If you have trouble with your hands or lifting your arms to your mouth, how do you prevent the spread of germs? I have difficulty lifting my arms, and I use the inside of my shirt to cover my mouth if I can’t get my arms up…[Read more]

When you heard about the virus, was the first thing you did or wanted to do was take out cash from the bank?

Check out this article from CNN: Do NOT take a bunch of cash out of the bank because of coronavirus

The safest place for your money is inside the bank and out of your hands, if you need to exchange commerce, try apps like Venmo.…[Read more]

I have been washing my hands so much that they have become dry. The thing with regular lotion is I have to wait for it to dry before I try and use my walker to go around the house. Hands with cream on them make it difficult to grip.

Do you have any good soap or lotion recommendations that clean and moisturize without leaving your hands…[Read more]

Here is some information about FSHD and the Coronavirus.

Here are practical suggestions:
– get a 90-day supply of your meds in case you are quarantined and cannot go out to get new ones.
– if you use supplemental oxygen, make sure you have a good compressor, not just tanks which could run out.
– make sure you’ve had the Pneumov…[Read more]

Where is everybody located, and how is your area treating COVID-19?

I live in Leland, North Carolina, right outside the larger city of Wilmington. There are only a few ways for me to get into Wilmington, and it is by bridge. I have heard rumors from friends and neighbors about what is going on in our city. The news has been all over the…[Read more]

Hey MD Fam! I hope everyone is staying safe and trying their best to practice social distancing during this time of COVID-19. I wanted to share some great tips from Kevin Schaefer of the SMA community!

1) Read: Netflix and Hulu are great, but nothing gets your mind going like a good book! I just finished the latest Stephen King…[Read more]

The weather this winter has been hot and cold. Some days I would wake up to 30-degree weather and others it would in the 60s. I have noticed that flowers and other plants have been creating a lot of pollen, it is already covering everything.

Have you noticed the flowers blooming? Are your allergies acting up early this year? How do you deal…[Read more]

I did not grow up playing video games, but I have friends who are enthusiastic gamers. Today there are adaptive technologies, making it accessible for almost everyone.

For those of you who are gamers, though, what devices do you use to play? Have you tried the new Xbox adaptive controller? Do you have any suggestions for someone who has…[Read more]

The Muscular Dystrophy Association has put out recommendations for people with neuromuscular diseases regarding COVID-19. Current guidelines for COVID-19 exposure have focused on specific communities related to risk to travelers, the elderly, and those with conditions that affect respiratory health. To inform the neuromuscular community of…[Read more]

Does your muscular dystrophy affect your facial expressions? Do you think that has an impact on your social life or relationships? Are you able to express yourself even if you can’t use the muscles in your face the way you want to?

My FSHD affects my face. When I smile, you can’t see my top teeth, and I can’t close my eyes tightly. It…[Read more]