Log In or Register to Join The Conversation!
  • Poppy posted a new activity comment 1 year, 1 month ago

    Hi Dani and Leah, thank you for accepting me into the group. I have LGMD2B . I am normally a very private person but I am struggling in finding people who just ‘get it’ and understand the daily challenges. Im looking forward to participating and discussing issues in such a private manner. Poppy.
      • We are so happy to have you! You are not alone and we are here to listen and help! I hope you had a good weekend!

      • Poppy, Dani and I are excited to get to know you and that you decided to join the forum. If there is any place to safely discuss you life with MD it would be here. If you need anything, don’t hesitate to ask.

    • Poppy became a registered member 1 year, 1 month ago

      • Welcome Poppy! My name is Dani Liptak I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general…[Read more]

      • Hi there Poppy. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

        Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you. The…[Read more]

        • Hi Dani and Leah, thank you for accepting me into the group. I have LGMD2B . I am normally a very private person but I am struggling in finding people who just ‘get it’ and understand the daily challenges. Im looking forward to participating and discussing issues in such a private manner. Poppy.
            • We are so happy to have you! You are not alone and we are here to listen and help! I hope you had a good weekend!

            • Poppy, Dani and I are excited to get to know you and that you decided to join the forum. If there is any place to safely discuss you life with MD it would be here. If you need anything, don’t hesitate to ask.

      Copyright © 2017-2020 All rights reserved.

      CONTACT US

      We're not around right now. But you can send us an email and we'll get back to you, asap.

      Sending
      or

      Log in with your credentials

      or    

      Forgot your details?

      or

      Create Account