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  • Donald Cole posted a new activity comment 2 months, 2 weeks ago

    not to bad leah thnks just got more news that now 3 outa 4 boys we have plus a grandson,,,15yrs has also got the md,mines called familal,myotonia myotonic dystrophy i havnt done much studing on what the diferance is but i know my feet are in a lot of pain ,got to see my neroligist soon as he said my feet might be a diferant problem
    • just found out as well as myself who has md 2 of my audult boys have it to,,neroligasigst very concerned as he says my condition is very rare but for 2 of my boys to have it is unbelievable

      • Donald, how are you and your family handling this news? This type of news can be devastating for some families but leaning on each other and talking things out can help a lot.
          • not to bad leah thnks just got more news that now 3 outa 4 boys we have plus a grandson,,,15yrs has also got the md,mines called familal,myotonia myotonic dystrophy i havnt done much studing on what the diferance is but i know my feet are in a lot of pain ,got to see my neroligist soon as he said my feet might be a diferant problem
          • I wish the best for you and your family. I hope you are able to find a way to ease your pain.
          • Donald Cole posted a new activity comment 3 months ago

            newoligist two gps and seen a phisiotheropist wich i cant see any more as i was told the md has taken over my nerve mussel system,
            • Donald Cole posted a new activity comment 3 months ago

              thnks will do when i get a moment,,with all these spesalist apointments
              • Donald Cole became a registered member 3 months, 1 week ago

                • Welcome, Donald! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

                • newoligist two gps and seen a phisiotheropist wich i cant see any more as i was told the md has taken over my nerve mussel system,
                  • Hey there Donald. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

                    Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with…

                    [Read more]

                • Donald Cole's profile was updated 3 months, 1 week ago

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