• Sheila Oliver became a registered member 1 year, 1 month ago

    • Welcome, Sheila! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general about the forums. Enjoy the day, and thank you again for joining the Muscular Dystrophy forum!

      • Thanks, Dani. Glad to be aboard.
          • Hey Sheila, we are doing a project next month called 30 Days of MD. This is something for MD awareness month in September, and I think you’d be a great contributor to this awareness campaign! The goal of this project is to feature a person with MD (or family member or partner to someone with MD) every day in September. At the end of the month, our goal is to have a collection of different approaches to different facets of life with MD, that hopefully reach and help manifest an optimism or empowerment for readers. This is a space for you to write about your experience with a particular topic, experience, or theme; and how MD has influenced that. This is a reflection of your experiences.
        • Hi Sheila and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

          Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called Mitochondrial Myopathy and wasn’t diagnosed until the age of 9.

          Here at the MD Forums, we are like a support group, sharing experiences, giving advice and generally discussing life with MD. Don’t hesitate to join in on any of our many forum topics. This a safe and judgment free zone. If you have any questions, want Dani and I to cover a specific topic or have any critiques on how we can improve the forums please let us know by private messaging either one of us on our profiles.

          Wishing you a lovely day,
          ~Leah

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