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  • Good evening..I have never posted before. I am mom of an almost 8 year old boy who was diagnosed with DMD and Autism a few days before his 6th birthday. 💔. He brings me great joy. He is still ambulatory, thanks be to God!. We found Dr. Brenda Wong within a week of his diagnosis and have been to the UMass Worcester DMD program every six months…[Read more]

    • Thank you for posting Mary! The way you described your son and his life is wonderful. It is so nice to read that he is friendly and loving as well as living his best healthy life, thanks to you! I think you made a great decision reaching out to this group. Having a support system is vital, especially when you feel like you’ve only been at it for…[Read more]

    • Mary, I apologize for my late reply. It sounds to me like you are doing everything right and providing your son with the best of care and full and happy life. What you have told me about him, he sounds a lot like me and my early symptoms of MD. I have a type of Muscular Dystrophy called Mitochondrial Myopathy. It is commonly linked with Autism. At…[Read more]

  • Mary Santos became a registered member 2 months, 1 week ago

    • Welcome, Mary! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

    • Hi there Mary and welcome to the MD News Forums. My name is Leah and I’m a moderator here alongside Dani. I have a rare type of Muscular Dystrophy called Mitochondrial Myopathy.

      Here at the forums we are like a support group, sharing experiences, giving advice and discussing life with MD. Don’t hesitate to join in on our many topics. This is a…[Read more]

  • Mary Santos changed their profile picture 2 months, 1 week ago

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