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  • Monix's profile was updated 1 year, 4 months ago

  • Monix changed their profile picture 1 year, 4 months ago

  • Hi, I don’t know if it’s the right forum, but I would like to discuss some issues that concern me a lot about the inclusion and exclusion criteria of clinical trials.
    Sorry for my English, I use google translate.
    Currently clinical trials have very strict parameters for the recruitment of patients. Some pharmacists limit access to the trial by the…[Read more]

  • Monix posted a new activity comment 1 year, 5 months ago

    Hello! I don´t speak english very well, so I´m going to write in spanish.
    Tengo un hijo con distrofia muscular de duchenne de 12 años. Vivimos en España. Gracias por registrarme!
    Creo que en el foro falta un tema fundamental y es un apartado de ensayos clínicos donde las familias puedan preguntar sobre el curso del ensayo, dudas, camb…

    [Read more]

    • Hola Monix!
      Esta es una gran idea. Pondremos una sección para ensayos clínicos en los foros. Gracias por su sugerencia.

    • Hola Monix. I don’t speak Spanish but My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

      Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to c…[Read more]

  • Monix became a registered member 1 year, 5 months ago

    • Welcome Monix! My name is Dani Liptak I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general…[Read more]

      • Hello! I don´t speak english very well, so I´m going to write in spanish.
        Tengo un hijo con distrofia muscular de duchenne de 12 años. Vivimos en España. Gracias por registrarme!
        Creo que en el foro falta un tema fundamental y es un apartado de ensayos clínicos donde las familias puedan preguntar sobre el curso del ensayo, dudas, camb…

        [Read more]

        • Hola Monix!
          Esta es una gran idea. Pondremos una sección para ensayos clínicos en los foros. Gracias por su sugerencia.

        • Hola Monix. I don’t speak Spanish but My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

          Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to c…[Read more]

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