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  • Personally,  I think that love and sex are incredibly important in our lives. My disability has represented a womans repelente, before,  when I was strong,  I always have a girlfriend a woman in my life etc, I was married 15 years,  and when the dystrophy get worse,  my marriage got to an end. After my divorce,  having a date has been proba…[Read more]

  • Thanks Dani. I have been traking medical trials since 2005. Serapta is conducting a medical trials for LGMD2E face 2 but for lgmd2b they are behind .

  • Rodrigo posted a new activity comment 1 month, 3 weeks ago

    Hi Dani, thanks for welcoming me. I am a 44 years old man, Ecuadorian / American, architect, living in Miami Florida. I have LGMD2B. I was practicing Olympic wrestling at the competition level, I represented my province (Pichincha 1993, 1994,1995), I was injured during training at the age of 20, then I couldn’t get over that lesion, d…

    [Read more]

    • Rodrigo, thanks for replying and reaching out. First, you are not alone. You have the members here on this forum, me and Leah, to talk with when you need some company. It is challenging now to want to reach out and talk to people about how we are feeling. I never realized how much I enjoyed going out and feeling freedom until it was taken away…[Read more]

  • I will, but I am not sure if it works for LGMD2B disferlyn deficiency. Can someone know it ?

  • Rodrigo became a registered member 1 month, 3 weeks ago

    • Welcome, Rodrigo! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

    • Hi Dani, thanks for welcoming me. I am a 44 years old man, Ecuadorian / American, architect, living in Miami Florida. I have LGMD2B. I was practicing Olympic wrestling at the competition level, I represented my province (Pichincha 1993, 1994,1995), I was injured during training at the age of 20, then I couldn’t get over that lesion, d…

      [Read more]

      • Rodrigo, thanks for replying and reaching out. First, you are not alone. You have the members here on this forum, me and Leah, to talk with when you need some company. It is challenging now to want to reach out and talk to people about how we are feeling. I never realized how much I enjoyed going out and feeling freedom until it was taken away…[Read more]

    • Hi there Rodrigo and welcome to the MD Forums. Like Dani said, you are not alone and I’m glad you decided to join the forum in order to talk to people going through the same circumstances to get advice and share experiences. It can be scary when your body doesn’t function as it should and has previously but you’re still pushing forward and t…

      [Read more]

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