• Lynn became a registered member 7 months, 3 weeks ago

    • Welcome, Lynn! My name is Dani Liptak, I am a moderator, along with Leah, for the MD forums! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general questions about the forums. Enjoy the day, and thank you again for joining the Muscular Dystrophy forum!

      • Lynn replied 7 months ago
        thank you, I’m checking in when I can but not very often at this point. I’m kinda finding it difficult to navigate and find info easily because of having to go back through so many pages to get back to the beginning where I feel a lot of information I’m looking for will be found when people are new and don’t know where to start…but I’m sure navigating will get easier!
      • Hi there Lynn. My name is Leah and I moderate the forums alongside Dani. I have a rare form of MD called Mitochondrial Myopathy that I was diagnosed with at the age of 9.

        Here at the MD Forums, we are like a support group-sharing experiences, giving advice and discussing life with MD in our many forum topics. This a safe and judgment free zone. If you have any questions, or have any critiques on how we can improve the forums please let either me or Dani know.
        We are excited to have you be a part of the MD Forum community!

          • Lynn replied 7 months ago
            Thanks Leah, looking forward to getting know you and learning more about the many forms of this disease!

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