• Rameshan became a registered member 2 years, 10 months ago

    • Hi there Rameshan. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

      Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you. The MD forum is a safe and secure place to discuss in depth about your life with Muscular Dystrophy. Don’t be afraid to participate in any of the forum discussions and share your own experiences. If you have any questions about the forums or would like me and Dani to touch in a certain topic, please let us know.

      • Hi leah,
        Nice knowing about you. My daughter, 25, has lgmd 2a. She is ambulatory and independent to some.extent.
        Expecting updates from through the forum.
      • Hi Rameshan! My name is Dani Liptak I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general about the forums. Enjoy the day, and thank you again for joining the Muscular Dystrophy forum!

        • Hi Dani
          Nice knowing you.
          My daughter 25 has lgmd 2a and is ambulatory.
          Looking forward to share my experiences.

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