Muscular Dystrophy News Forums | Rameshan | Activity https://musculardystrophynews.com/forums/members/ramesh/activity/ Activity feed for Rameshan. Thu, 09 Apr 2026 07:35:58 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 369008e5eb83f0307947ea4151e3458c Rameshan started the discussion R&D, Clinical Trials in LGMD 2A in the forum Science, Research, Clinical Trials https://musculardystrophynews.com/forums/forums/topic/rd-clinical-trials-in-lgmd-2a/ Fri, 10 Jul 2020 20:35:57 -0500 R&D, Clinical Trials in LGMD 2A

Dear Sir/Madam

While going through your article, I have observed that it was posted in 2018. Can you please provide me the latest reports on the subject, R&D, Clinical Trials in LGMD 2A.

I will be greatly obliged in receiving your kind reply.

BEST REGARDS

RAMESHAN KANNOTH

]]> 8ff7495e0750a080d9cea30e73ec5ef2 Rameshan posted a new activity comment https://musculardystrophynews.com/forums/activity/p/666/#acomment-4576 Thu, 04 Jun 2020 18:35:42 -0500 Your story is truly inspiring. Working 23 years nonstop and raring to go is really with such a crippling disease is the mark of a champion. Surely your grit and spirit will be true inspiration for people like us. All the best.

    In reply to - Becky became a registered member ]]>         6d87c1cf88d26a8cf5597f8308efe917 Rameshan replied to the discussion Medication and supplements for sleep in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/medication-and-supplements-for-sleep/#post-14730 Wed, 15 Jan 2020 19:06:58 -0600 Reply to Medication and supplements for sleep

    Hi

    What is exactly melatonin. Is it a drug or something else. Is it habit forming. I know sunrays produce melatonin on skin.

    Regards,

    Rameshan Kannoth

     

     

    ]]>         95d3ee8d92896e2667293df85407de47 Rameshan replied to the discussion First Time Having A Stranger Give You A Shower in the forum Parents and Caregivers https://musculardystrophynews.com/forums/forums/topic/first-time-having-a-stranger-give-you-a-shower/#post-14570 Wed, 15 Jan 2020 00:49:48 -0600 Reply to First Time Having A Stranger Give You A Shower

    Hi Dani

    I know it would be really awkward to take the help from a strange for such a private thing.

    So i want to put you at ease with a joke. Hope it’s not a man!😜😝

    Regards

    RAMESH

    ]]>         4cb7b4819004954bd2356be87c499f4d Rameshan changed their profile picture https://musculardystrophynews.com/forums/activity/p/3377/ Thu, 28 Nov 2019 20:49:52 -0600 0 4591575c87c7a01ab5fce876d7571072 Rameshan posted a new activity comment https://musculardystrophynews.com/forums/activity/p/3294/#acomment-3376 Thu, 28 Nov 2019 20:41:04 -0600 Hi Dani
    Nice knowing you.
    My daughter 25 has lgmd 2a and is ambulatory.
    Looking forward to share my experiences.
    Regards
    Rameshan

      In reply to - Rameshan became a registered member ]]>             c15e7ec28ff9aefd5270de7290efb660 Rameshan posted a new activity comment https://musculardystrophynews.com/forums/activity/p/3294/#acomment-3375 Thu, 28 Nov 2019 20:38:41 -0600 Hi leah,
      Nice knowing about you. My daughter, 25, has lgmd 2a. She is ambulatory and independent to some.extent.
      Expecting updates from through the forum.
      Regards
      Rameshan

        In reply to - Rameshan became a registered member ]]>                 4474854ea049402a2afb77a984ec0bf1 Rameshan posted a new activity comment https://musculardystrophynews.com/forums/activity/p/666/#acomment-3374 Thu, 28 Nov 2019 20:26:28 -0600 Hi Becky
        From which country are you. I am from India. We expect lot of first hand information from the west as we do not have much research here.

        My daughter nearing 25 have lgmd 2a and she reasonably independent. How about you.

        Best regards
        Rameshan

          In reply to - Becky became a registered member ]]>                     d6df13837a301e5f60b8d20e37ce6303 Rameshan replied to the discussion A new, improved CRISPR in the forum Science, Research, Clinical Trials https://musculardystrophynews.com/forums/forums/topic/14371/#post-14428 Thu, 28 Nov 2019 20:13:14 -0600 Reply to A new, improved CRISPR

          Is crispr specific only to fshd. What about lgmd. Is the research in an advanced stage.

          ]]>                     d4cba76ce828f3e0ed733ac6e9c5a30e Rameshan replied to the discussion Needing help with doors and elevators in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/needing-help-with-doors-and-elevators/#post-14427 Thu, 28 Nov 2019 20:08:08 -0600 Reply to Needing help with doors and elevators

          People’s attitude towards disabled people are confusing. I don’t whether to pity them or ourselves.

          ]]>                     256c58a84b4f5b4bc4e2a9399b627538 Rameshan became a registered member https://musculardystrophynews.com/forums/activity/p/3294/ Thu, 21 Nov 2019 11:30:49 -0600 4