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  • Steve Hain became a registered member 1 year, 6 months ago

    • Welcome Steve! My name is Dani Liptak I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of our open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general about the forums. Enjoy the day, and thank you again for joining the Muscular Dystrophy forum!

      • Thank you, Dani, for the kind, personal intro. I have an 18yr old son with DMD who is going to be a college freshman this fall. My wife and son and I will look through the forums to see if we can give any advice, and we may have some things to ask about in the near future too. Very nice to meet you and thanks for your work with the forums.
          • That is awesome! We are hear for any questions you have! I went to a small college in Virginia and my dad bought me a golf cart for when it rained and snowed so I would still have a way to get to class and park extremely close to the entrance of the building. I could still walk at the time but I had difficulty with rain, snow, and walking long distances. After my four years we sold it to the school. Let us know whatever is on your mind, and congrats to your son!

      • Hi there Steve. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

        Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you. The MD forum is a safe and secure place to discuss in depth about your life with Muscular Dystrophy. Don’t be afraid to participate in any of the forum discussions and share your own experiences. If you have any questions about the forums or would like me and Dani to touch in a certain topic, please let us know.

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