• Tarek became a registered member 3 months, 1 week ago

    • Welcome, Tarek! My name is Dani, and I was diagnosed with Facioscapulohumeral (FSHD) Muscular Dystrophy at 12.
      The MD News Forums are like a support group where you can share experiences, give advice, and discuss life with MD. Please know that this is a safe and judgment-free zone. If you have any questions or want to suggest a topic or give feedback on improving the forums, please let us know by private messaging either me or Leah on our profiles.
      Thanks so much for joining the community here at MD News!

    • Hi there Tarek and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

      Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called Mitochondrial Myopathy and wasn’t diagnosed until the age of 9.

      Here at the MD Forums, we are like a support group, sharing experiences, giving advice and generally discussing life with MD. Don’t hesitate to join in on any of our many forum topics. This a safe and judgment free zone. If you have any questions, want Dani and I to cover a specific topic or have any critiques on how we can improve the forums please let us know by private messaging either one of us on our profiles.

      Wishing you a lovely day,
      ~Leah

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