@tpineda3121
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Tina Pineda replied to the topic Choosing Between Working and Having SSI Benefits in the forum Adults With Muscular Dystrophy 4 months, 4 weeks ago
I currently work and just recently started taking Mondays off. It is getting harder and harder to work especially with having so much pain. At the end of the week, I’m exhausted and my weekends are spent in pain and discomfort and a lot of tears. Doctors have diagnosed me with osteoarthritis and we’re hoping the medication they have me on giv…[Read more]
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Tina Pineda posted a new activity comment 7 months ago
Hi Dani,
I am interested in seeing what everyone is experiencing with Bethlem Myopathy or any other form of MD. I’m completely blindsided by the lack of medical professionals that don’t know anything about Muscular Dystrophy and how everyone handles the financial hardships that come with having a disability. What symptoms are people exp…[Read more] -
Tina Pineda posted a new activity comment 7 months, 3 weeks ago
Hi Leah,
It’s great to meet you.
I was diagnosed with Bethlem Myopathy 11 months ago at the age of 35. My daughter was also diagnosed at the age of 5.
It’s great to have a judge free forum.
Thank you, -
Tina Pineda posted a new activity comment 7 months, 3 weeks ago
Hi Dani,
I was diagnosed with Bethlem Myopathy 11 months ago. It’s good have a forum where we can share our experience.-
What are you interested in gaining from the forums? Please share any questions or experiences you have; we would love to learn more about you!
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Hi Dani,
I am interested in seeing what everyone is experiencing with Bethlem Myopathy or any other form of MD. I’m completely blindsided by the lack of medical professionals that don’t know anything about Muscular Dystrophy and how everyone handles the financial hardships that come with having a disability. What symptoms are people exp…[Read more]
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Tina Pineda became a registered member 7 months, 4 weeks ago
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Welcome, Tina! My name is Dani Liptak. I am a moderator on the forums, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at 12. Please feel free to respond to any open discussions we currently have! Also, let me know if there is a topic that you would like to discuss or any general questions about the forums.…[Read more]
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Hi Dani,
I was diagnosed with Bethlem Myopathy 11 months ago. It’s good have a forum where we can share our experience.-
What are you interested in gaining from the forums? Please share any questions or experiences you have; we would love to learn more about you!
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Hi Dani,
I am interested in seeing what everyone is experiencing with Bethlem Myopathy or any other form of MD. I’m completely blindsided by the lack of medical professionals that don’t know anything about Muscular Dystrophy and how everyone handles the financial hardships that come with having a disability. What symptoms are people exp…[Read more]
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Hi there Tina and welcome! My name is Leah and I moderate the forums alongside Dani. I have a rare form of MD called Mitochondrial Myopathy that I was diagnosed with at the age of 9.
Here at the MD Forums, we are like a support group-sharing experiences, giving advice and discussing life with MD in our many forum topics. This a safe and judgment…[Read more]
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Hi Leah,
It’s great to meet you.
I was diagnosed with Bethlem Myopathy 11 months ago at the age of 35. My daughter was also diagnosed at the age of 5.
It’s great to have a judge free forum.
Thank you,-
We’re more than happy to have you here with us on the forum. My mom was diagnosed with the same type as me only a few years ago. It isn’t very common for the carrier parent to start showing symptoms as well although it does happen.
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We’re more than happy to have you here with us on the forum. My mom was diagnosed with the same type as me only a few years ago. It isn’t very common for the carrier parent to start showing symptoms as well although it does happen.