• Tracy Capp became a registered member 2 months, 4 weeks ago

    • Welcome, Tracy! My name is Dani Liptak, I am a moderator on the forums, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any general questions about the forums. Enjoy the day, and thank you again for joining the Muscular Dystrophy forum!

    • Hi there Tracy. My name is Leah and I moderate the forums alongside Dani. I have a rare form of MD called Mitochondrial Myopathy that I was diagnosed with at the age of 9.

      Here at the MD Forums, we are like a support group-sharing experiences, giving advice and discussing life with MD in our many forum topics. This a safe and judgment free zone. If you have any questions, or have any critiques on how we can improve the forums please let either me or Dani know.
      We are excited to have you be a part of the MD Forum community!
      ~Leah

        • Hello Dani and Leah. Nice to meet you both. Thank you for welcoming me to this group. I was just diagnosed about a year ago with Central Core Disease and Duchene’s . My daughter is my twin she has everything I have. She was diagnosed with Central Core Disease when she was 9 and diagnosed with Duchene’s about the same time as me. My husband cursed her when I was pregnant with her, cause he said that he wants her to be just like me. So, it turns out he got his wish. We figured out that she has malignant hyperthermia when she was 2 months old and she had her hip surgery cause she was born with both hips dislocated. That was very scary. I was 19 and she was my first child and born 2 months early. So, it’s always been an adventure with her. Thank you again.

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