Managing daily life with a chronic disease like Duchenne muscular dystrophy (DMD) is an exercise in adaptability and flexibility. Along the way, you will encounter new challenges and obstacles, but you will also learn how to be resourceful and creative in finding solutions and overcoming these barriers. The following articles can help you as you learn to navigate your everyday with DMD.
Duchenne muscular dystrophy (DMD) is a rare genetic disorder that causes progressive muscle weakness. People living with DMD and their families face a variety of challenges every day. A path to prompt,…
Life skills like managing health, relationships, and mobility can help teens and young adults with Duchenne muscular dystrophy stay independent. With the right support, it’s possible to build confidence and take charge of your future.
A structured care plan for ambulatory individuals with Duchenne muscular dystrophy helps maintain mobility, manage symptoms, and prepare for future needs. Regular monitoring, therapy, and assistive strategies can support independence and enhance quality of life.
Treatment and care plans for DMD should evolve over time to meet changing needs. Because disease progression can vary significantly, each person’s care plan will be different and address their specific needs and goals.
Knowing the facts about DMD can help you better understand the disease, so you can feel more in control, maintain your quality of life, and make more informed decisions about treatment options.
People with DMD are at an increased risk of osteoporosis because of the disease itself, as well as from medications. Taking measures to maintain bone health is an important part of managing the disease.
Learn how four people with Duchenne muscular dystrophy manage the disease and its symptoms and incorporate treatment and management strategies into their everyday life.
Adaptive equipment can help support the independence and quality of life of people with Duchenne muscular dystrophy by helping with mobility, eating, bathing, communication, and other daily tasks.
Home improvements, such as accessible bathrooms and kitchens, can help people with DMD navigate daily life with greater ease, independence, and safety.
Shalom Lim, who lives with Duchenne muscular dystrophy, celebrates a relationship milestone and affirms that waiting for and finding true love is worth the effort.
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