columns

October 7, 2019October 3, 2019

The Right Job Can Help You Find Fulfillment and Purpose

columns, Hawk's-Eye View - a Column by Hawken Miller

I’ve just wrapped up my internship with The Washington Post. My experience has made me think about the added benefits that a job brings. When you have Duchenne muscular ... Read more

October 3, 2019October 10, 2019

Opportunities Abound for Travel and Accessibility

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

My first column for Muscular Dystrophy News Today focused on the excitement of starting something new in life. I promised that future columns would focus on the many adventures ... Read more

October 1, 2019September 27, 2019

Honoring Serena Lawrence: How Her Life Changed Mine

columns, You, Me and MD - a Column by Leah Leilani

In the summer of 2017, I received an email from a woman named Serena Lawrence. She had discovered me on Instagram, and had learned about my past ambassadorship with ... Read more

September 23, 2019September 19, 2019

Redefining the Word ‘Independence’

columns, Hawk's-Eye View - a Column by Hawken Miller

Since early childhood, we have all strived to become independent. We want to be able to do things on our own. However, to achieve independence with Duchenne muscular dystrophy, ... Read more

September 19, 2019September 25, 2019

‘30 Days of MD’ Brings Awareness That Lasts All Year

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

I am proud to say that Muscular Dystrophy News Today is running a great initiative called “30 Days of MD.” This series of stories by patients, caregivers, researchers, and ... Read more

September 12, 2019October 2, 2019

National LGMD Conference Builds the MD Community

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

This past weekend, I had the opportunity to take part in a very special conference in Chicago. I’d had the honor of seeing this event grow from the idea ... Read more

September 10, 2019September 5, 2019

My Asthma Flare Inspired Me to Buy a Vogmask

columns, You, Me and MD - a Column by Leah Leilani

For most of my life, I’ve suffered from viral-induced asthma. While coughing and wheezing are often a constant with standard asthma, viral-induced asthma is triggered by infections such as ... Read more

September 9, 2019September 5, 2019

Regular Checkups Can Help You Stay Well for as Long as Possible

columns, Hawk's-Eye View - a Column by Hawken Miller

Life can get hectic sometimes, especially when you are dealing with a rare disease such as Duchenne muscular dystrophy. However, you shouldn’t let your busy schedule prevent you from ... Read more

September 3, 2019September 18, 2019

My Boyfriend Is Full of Ideas to Help Fight Inaccessibility

columns, You, Me and MD - a Column by Leah Leilani

When I first started my search for a possible partner in life, all I asked for was someone who’d love me and understand my rare condition, mitochondrial myopathy. I ... Read more

August 29, 2019September 25, 2019

Inaccessible Accessibility: It’s Time to Get Serious

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

Let’s really get serious about what accessibility is. The website Disabled World calls it the “‘ability to access’ the functionality, and possible benefit, of some system or entity.” In ... Read more