Columns

March 12, 2021March 9, 2021

What I’ve Learned Since My Son’s LAMA2 MD Diagnosis

Bloom – a Column by Prudence Jones, Columns

On Oct. 21, 2019, I sat in a doctor’s office with my 11-month-old son, Alfie, and was handed a piece of paper. Nothing was said, nothing was explained — I ... Read more

March 8, 2021March 4, 2021

I’m Ready to Go Forward After My 2nd Dose of the COVID-19 Vaccine

Columns, Hawk's-Eye View - a Column by Hawken Miller

On Feb. 19, I received my second dose of the Pfizer COVID-19 vaccine. According to the nurse who gave me the injection and clinical trial results from the biotech company, ... Read more

March 3, 2021March 2, 2021

A Hefty Guitar Impacts My Ability to Keep the Music Going

Columns, Of Dragons and Dystrophin – a Column by Andy Rusch

When I was a kid, music from the likes of Led Zeppelin, Fleetwood Mac, and Jim Croce swirled around the house. The three were staples in my dad’s vast collection ... Read more

February 22, 2021February 18, 2021

Yes, We Are Rare, but Please Realize We Are Human First

Columns, Hawk's-Eye View - a Column by Hawken Miller

Rare Disease Day, a global push for rare disease awareness, is less than a week away, on Feb. 28. As someone with a rare disease myself, I’ve heard the word ... Read more

February 17, 2021February 16, 2021

How an Albino Direwolf Named Ghost Made Me Think About Being Rare

Columns, Of Dragons and Dystrophin – a Column by Andy Rusch

“A white wolf in a white wood, silent as a shadow.” – “A Dance with Dragons,” George R. R. Martin I wanted to write something that encompasses the upcoming Rare ... Read more

February 8, 2021February 4, 2021

It’s Time for Me to Go Outdoors and Take in the Vitamin D

Columns, Hawk's-Eye View - a Column by Hawken Miller

In the last year, it’s been easy for me to coop myself up in my room and spend the entire day without stepping outside once. I’m either afraid of getting ... Read more

February 3, 2021February 1, 2021

Welcome to the Castle: Facing Down and Defeating Your Fears

Columns, Of Dragons and Dystrophin – a Column by Andy Rusch

His palms firmly pressed against the pommel, he holds the sword close to his chest. He can feel the heat from the fire on the other side of the stone ... Read more

January 25, 2021January 21, 2021

Why I’m Taking a Break From Playing Video Games

Columns, Hawk's-Eye View - a Column by Hawken Miller

I’m a self-described gamer, and proud of it, but lately I’ve realized I’ve probably been playing too much. Two weeks ago, during online church services, we talked about fasting, including ... Read more

January 19, 2021January 15, 2021

A Bittersweet Farewell to My Column Readers

Columns, You, Me and MD - a Column by Leah Leilani

Dear readers, This will be my last column for Muscular Dystrophy News. I want to thank you for following along with “You, Me, and MD” and for supporting me. You ... Read more

January 12, 2021January 7, 2021

I Make Sure My Support System Is Strong

Columns, You, Me and MD - a Column by Leah Leilani

When I’m deep in thought, reflecting on my life, I shudder to think who and where I’d be without the support of my family and friends. Whether I need a ... Read more