Let me make it clear that I am not opposed to questions about my disease and why I use a wheelchair. In fact, I encourage them. I mean, we ... Read more
Whether your child has been living with Duchenne muscular dystrophy for years or was just diagnosed, I’m here to remind you that it isn’t the end of the world. ... Read more
Some of my recent columns have been exhausting to write. This is because many of the experiences I have discussed have been difficult to actually live through. We live ... Read more
Being reliant on a wheelchair is not always easy, but there’s no reason to let wheels stop you from getting out and having a good time. Modern technology and ... Read more
I have limb-girdle muscular dystrophy type 2L (LGMD2L). My previous column, “I Live Creatively to Power Past Obstacles,” discussed how I live with my limitations. For me, the biggest ... Read more
For several years, I’ve been feeling nauseated in the mornings after I eat breakfast. Whatever food item occupies my plate that morning — be it a chocolate chip muffin ... Read more
I believe that my physical limitations heighten my observational skills and journalistic Spidey sense. Throughout my life, I’ve realized that I notice and remember the finer details that my ... Read more
Last Wednesday, July 24, was the four-year anniversary of the day I got my first and only tattoo. One month earlier, I had turned 18 and graduated from high ... Read more
I have a lot going on in my life right now, and I don’t get enough time to rest. I’m transitioning to independent living, keeping track of my income ... Read more
Writing a weekly column has been enjoyable. It has been great to examine a variety of issues that are important to the muscular dystrophy community. It also provides a ... Read more
Pin It on Pinterest
We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it. We never use your cookies for creepy ad retargeting that follows you around the web. OkRead more
