columns

October 6, 2020October 2, 2020

Living for Myself While Hoping for the Right Person

columns, You, Me and MD - a Column by Leah Leilani

I have clear memories of listening to my fourth-grade friends talk about what their “boyfriends” got them for Valentine’s Day, or whispering between one another during class about who ... Read more

October 5, 2020October 1, 2020

Removing Barriers to Employment for People With Disabilities

columns, Hawk's-Eye View - a Column by Hawken Miller

As a journalist and person with Duchenne muscular dystrophy, I have a dual purpose. I want to inform people and hold those in power accountable. I also want to ... Read more

September 21, 2020September 17, 2020

The Value of Having Friends With the Same Disease

columns, Hawk's-Eye View - a Column by Hawken Miller

Over the last couple of years, I’ve had opportunities to meet and befriend more adults with Duchenne muscular dystrophy. Whether we’ve found one another through CureDuchenne events or a ... Read more

September 14, 2020September 10, 2020

Overcoming the Idea of Being a Burden

columns, Hawk's-Eye View - a Column by Hawken Miller

As I’ve started relying more on people for things I used to do on my own, it’s become easier to ask for help without feeling like a burden. This ... Read more

August 25, 2020August 21, 2020

The Battle Against Ableism Is Tiring, but I Won’t Give Up

columns, You, Me and MD - a Column by Leah Leilani

A few unfortunate circumstances recently have left me mentally exhausted by the endless recurrence of ableism. It feels as though ableism lurks around every corner, waiting for the opportune ... Read more

August 24, 2020August 20, 2020

Why It’s Important to Be Still Amid the World’s Chaos

columns, Hawk's-Eye View - a Column by Hawken Miller

The world can be overwhelming thanks to the deadly coronavirus pandemic, especially for someone dealing with muscular dystrophy. On top of the daily struggles — lack of mobility, physical ... Read more

August 11, 2020August 10, 2020

I’m Sleeping Comfortably Now, Thanks to a New Mattress

columns, You, Me and MD - a Column by Leah Leilani

Most mitochondrial myopathy patients rely on sleep as therapy for our disease. Yes, rest can be effective at regenerating lost energy, but there’s nothing comparable to a restful night’s ... Read more

August 10, 2020August 7, 2020

Losing My Ability to Walk Won’t Stop Me

columns, Hawk's-Eye View - a Column by Hawken Miller

When I was younger, I couldn’t imagine losing my ability to get up from the ground, run, or play soccer. Now I can’t imagine losing my ability to walk. ... Read more

August 4, 2020July 30, 2020

The Angels Who’ve Profoundly Affected My Life

columns, You, Me and MD - a Column by Leah Leilani

Living with a disability often means I’m exposed to people’s true colors. This can be both positive and negative. My disease has familiarized me with the cold shoulders of ... Read more

July 30, 2020July 28, 2020

A Day on the Hill: Using Our Voices to Lobby Lawmakers

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

Columnist’s Note: Dear reader, this will be my final column at Muscular Dystrophy News. The past 15 months have been wonderful, but I have decided to take time away ... Read more

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