columns

March 26, 2020March 24, 2020

The Muscular Dystrophy Community Counts on Accessibility Improvements

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

I feel strange not writing about the pandemic crisis in this column, but we’re already bombarded with information about it, and it appears we will deal with these issues ... Read more

March 17, 2020March 16, 2020

Redefining Success While Living with a Chronic Illness

columns, You, Me and MD - a Column by Leah Leilani

I never have an answer to the questions, “Where do you see yourself in five to 10 years?” or “What are your future goals?” Mitochondrial myopathy is a rare ... Read more

March 16, 2020March 12, 2020

Celebrating My First Year of Writing Columns

columns, Hawk's-Eye View - a Column by Hawken Miller

This week, I celebrate my one-year anniversary of writing columns for BioNews Services. A lot has happened in that year: I graduated from college, interned at The Washington Post, ... Read more

March 12, 2020March 10, 2020

One Year Later: Catch Me if You Can

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

March 1 was my one-year anniversary with BioNews Services, the publisher of Muscular Dystrophy News. Defining a period in this manner allows me to see how far I’ve come ... Read more

March 10, 2020March 6, 2020

My Favorite Moments at This Year’s LA Abilities Expo

columns, You, Me and MD - a Column by Leah Leilani

On Saturday morning, Feb. 22, I awoke with excited anticipation of the day ahead. That day, I attended the Los Angeles Abilities Expo for the second year in a ... Read more

March 2, 2020February 27, 2020

Life Isn’t Fair, but I Can Make the Best of It

columns, Hawk's-Eye View - a Column by Hawken Miller

If we lived in a fair world, Duchenne muscular dystrophy would not exist. Unfortunately, life isn’t fair, and I was diagnosed with the muscle-wasting disease 18 years ago. Even ... Read more

February 27, 2020February 25, 2020

On Rare Disease Day, Let’s Dare to Be Rare

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

In the coming days, a great deal of focus will be placed on Rare Disease Day, which is Feb. 29. And for good reason. Approximately 7,000 rare diseases affect ... Read more

February 25, 2020February 21, 2020

I Advocate for Disability Rights with Apparel and Accessories

columns, You, Me and MD - a Column by Leah Leilani

Many years ago, I wore a green wristband adorned with the words “energy for life.” This phrase helped me to promote awareness about my disease, mitochondrial myopathy. I wore ... Read more

February 17, 2020February 13, 2020

As Adults with DMD, We Have a Responsibility to Mentor Younger Generations

columns, Hawk's-Eye View - a Column by Hawken Miller

Adults with Duchenne muscular dystrophy (DMD) should help younger generations through the difficult parts of growing up with a rare muscular disease. They need someone in a similar situation ... Read more

February 13, 2020February 12, 2020

Addressing the Funding Crisis for Social Security

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

For those of you who follow my column, I have some good news: Sammy Eikahldit is back. My alter ego, Sammy, first appeared in my column on true accessibility ... Read more

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