How my perspective on FSHD changed over the years
As I start a new adventure writing for Muscular Dystrophy News Today, I’d say the first sentence is the hardest. I’m so glad I got that out of the way! I’ve joined the team at BioNews, the…
Working Through the Process — Robin Stemple
Rob was diagnosed with FSHD at 14 and has struggled with its effects for over 50 years. In addition, Rob lost his eyesight in a devastating crash with a drunk driver when he was 31. He has been a special education teacher, director of a nonprofit organization serving the blind, and a newspaper columnist. Rob lives in Pittsburgh with his wife, Wendy, where they both enjoy hanging out with their kids and grandkids. Rob is a keyboard player and recording artist. He enjoys performing at nursing homes and church.
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The advantages of keeping an open mind when meeting a new doctor
Having just moved to Pittsburgh from rural Somerset County, Pennsylvania, one of the many things I had to attend to was finding a new primary care physician. Back in Somerset, there weren’t many choices. Around 2003, I started…
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