Advocacy Partner: CureDuchenne

CureDuchenne is a global leader in research, patient care and innovation for improving and extending the lives of those with Duchenne muscular dystrophy. CureDuchenne’s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy, including 18 projects that advanced to human clinical trials and multiple projects to overcome the limitations of exon-skipping and gene therapy. In addition, CureDuchenne contributed early funding to the first FDA-approved Duchenne drug, pioneered the first and only Duchenne physical and occupational therapist certification program and created an innovative biobank and data registry, accelerating research toward a cure.

Phone: 949-872-2552
Email:  [email protected]

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CureDuchenne Announces Educational Events for Families and Caregivers of Individuals with Duchenne or Becker Muscular Dystrophy

Upcoming Events Offer Treatment Updates and Essential Resources to Support Families and Enhance Quality of Life

NEWPORT BEACH, Calif., January 31, 2025 – CureDuchenne, a global leader in advancing research and patient care for individuals with Duchenne and Becker muscular dystrophy, is proud to announce its 2025 schedule of events for families and caregivers. These events are designed to educate and connect attendees while highlighting the latest advancements in treatment and care for Duchenne and Becker muscular dystrophies. They will also provide vital resources and support for affected families.

CureDuchenne will host free full-day workshops and dinner sessions across the country throughout 2025, as well as its FUTURES National Conference in San Antonio, Texas, in May. At workshops, local healthcare professionals and experts from CureDuchenne share best practices in multidisciplinary care and physical therapy techniques that can extend mobility. Attendees can participate in insightful discussions with clinicians and experts on topics not typically covered during clinic visits. CureDuchenne’s scientific team also provides updates on the latest research advancements and treatment options, including current clinical trials. The events feature an interactive “Open House” with local resources for families. Breakfast and lunch are provided, and travel assistance is available for eligible applicants. Translation services are available at all workshops.

The dinner sessions will offer intimate gatherings for caregivers to focus on mental health, well-being, and building community connections. These sessions are designed to create a safe space for open dialogue, fostering support among families who understand the unique challenges of caregiving for individuals with Duchenne or Becker.

The highly anticipated FUTURES National Conference will be held on May 22-25 at the JW Marriott San Antonio Hill Country Resort & Spa. The multi-day conference will feature expert-led presentations on groundbreaking treatments, care strategies, and the latest research in Duchenne and Becker muscular dystrophy. Families will also enjoy engaging activities, including a gaming lounge for children, networking opportunities, and social events that bring the community together. The conference will also be available for attendees to join virtually. Translation services are available for all sessions at FUTURES.

Debra Miller, founder and CEO of CureDuchenne, emphasized the importance of these events in providing more than just information. “CureDuchenne’s mission has always been to advance research and to empower families and caregivers with knowledge and support, ensuring no one faces the challenges of Duchenne or Becker alone,” said Miller. “These events go beyond education—they are a bridge to hope, bringing together the community to share experiences, resources, and cutting-edge insights into therapies and care.”

CureDuchenne 2025 Events

• February 1, 2025: Kansas City, MO (Workshop)

• March 1, 2025: Birmingham, AL (Workshop)

• March 8, 2025: Louisville, KY (Dinner Session)

• March 22, 2025: New Orleans, LA (Dinner Session)

• April 5, 2025: Nashville, TN (Workshop)

• April 26, 2025: San Diego, CA (Dinner Session)

• May 22-25, 2025: CureDuchenne FUTURES National Conference, San Antonio, TX

• August 23, 2025: Costa Mesa, CA (Workshop)

• September 13, 2025: Philadelphia, PA (Workshop)

• September 27, 2025: Salt Lake City, UT (Dinner Session)

• October 4, 2025: West Hartford, CT (Dinner Session)

• October 18, 2025: Omaha, NE (Workshop)

• November 8, 2025: Chicago, IL (Dinner Session)

• November 15, 2025: Boston, MA (Workshop)

• December 6, 2025: Phoenix, AZ (Dinner Session)

To register or find more information on CureDuchenne Cares events, please visit www.cureduchenne.org/events.

About CureDuchenne
Over twenty years ago, CureDuchenne was created with one goal: to find and fund a cure for Duchenne muscular dystrophy, one of the most common and severe forms of muscular dystrophy. Today, CureDuchenne is recognized as a global leader in research, patient care and innovation for improving and extending the lives of those with Duchenne. CureDuchenne’s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy, including 18 projects that advanced to human clinical trials and multiple projects to overcome the limitations of exon-skipping and gene therapy. In addition, CureDuchenne contributed early funding to the first FDA-approved Duchenne drug, pioneered the first and only Duchenne physical and occupational therapist certification program and created an innovative biobank and data registry, accelerating research toward a cure. For more information on how to help raise awareness and funds needed for research, please visit cureduchenne.org.

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