Elaine Goodman,  —

Recent Posts

• This time, new medical equipment is hard for me to accept
• Rare pediatric disease designation granted to LAMA2-CMD therapy
• DMD treatment WVE-N531 boosts dystrophin: Interim trial data
• Capricor to seek deramiocel’s FDA approval for DMD heart disease
• Examples of ableism I’ve encountered in life with FSHD
• MDA Engage offers neuromuscular disease updates, connections
• How I fully embrace life with limb-girdle muscular dystrophy
• Going gray prompts questions about the impact of caregiving on my life
• DMD treatment SMT-M01 gets FDA orphan drug, rare disease tags
• Why patient advocacy is important for those of us with Duchenne