Julie Russell,  —

Recent Posts

• How I measure my quality of life as someone with LGMD
• How I’ve learned to embrace the highs and lows of caregiving
• Over 20 new MDA grants will fund research into muscle diseases
• There’s never a dull moment living with Duchenne muscular dystrophy
• Sevasemten lowers markers of muscle damage in BMD: Trial
• How my teaching job reminds me that I’m more than a caregiver
• Agamree recommended for NHS use in UK, approved in China
• I’ll continue to do what I love, despite the FSHD ‘hangovers’
• $10M in prizes offered toward work on FSHD treatments
• Arrakis’ RNA-targeted oral therapies showing promise for DM1