Recent Posts
- NS Pharma DMD treatment gets FDA rare pediatric disease status
- Atamyo, Dion Foundation partner to expand LGMD study into US
- Teaching students about life with limb-girdle muscular dystrophy
- How my late brother and I left a mark on our DMD community
- Lessons that come from a long journey with DMD
- DYNE-251 leads to improvements in motor function in DMD: Update
- Noninvasive qMRI seen to detect muscle changes in LGMD type R1
- How I’ve gotten through a busy season in the life of my family
- Marking ’30 Days of Strength’ for MD Awareness Month this year
- Making memories on what was likely my last family vacation