Photo courtesy of Sarah Lacey Day 20 of 30 This is Sarah Lacey’s story: My son Sam is 17 years old and has Duchenne muscular dystrophy (DMD). He was diagnosed when he was 5 and needed to be in a wheelchair full time by age 10. DMD is…
30 Days of MD
Photo courtesy of Connor Shanta Day 19 of 30 This is Connor Shanta’s (@bigmanshanta) story: I live with facioscapulohumeral muscular dystrophy (FSHD). This disease affects the strength of all my muscles but specifically the face, scapular, and arms. I use a power wheelchair to get around. I…
Photo courtesy of Brad Miller Day 18 of 30 This is Brad Miller’s (@MyBeckersStory) story: Hi, my name is Brad, author of the My Beckers Story blog, and I’m in my mid-40s living with Becker muscular dystrophy. Over the last few years, I have…
Photo courtesy of Andy Rusch Day 17 of 30 This is Andy Rusch’s (@wildernessandwolf) story: As someone with Becker muscular dystrophy, I have difficulty with stairs, inclines, and falling. I now have much more difficulty than I used to have. As I’ve grown older, I’ve been transitioning…
Photo courtesy of Lisa D’Andrea Day 16 of 30 This is Lisa D’Andrea’s (@burgiesgirl) story: Six decades of living with Bethlem myopathy have taught me to doggedly pursue the things that make me happy. Being mobility-impaired has made me an expert in finding fun in the things…
Photo courtesy of Adeel Rizvi Day 15 of 30 This is Adeel Rizvi’s story: Each of us is different and unique, and that’s a good thing. My philosophy on life is about recognizing that I am who the other is not. We must appreciate all that we have and…
Photo courtesy of Dominic Marabello Day 14 of 30 This is Dominic Marabello’s (@marabellofitness) story: When I was a teenager, I noticed that other boys my age were beginning to grow muscle while my thin frame remained the same. As I entered my sophomore year of high school, I…
Photo courtesy of Evi D. Day 13 of 30 This is Evi D.’s story: Hi! I’m Evi, 33 years old, and living in Belgium. I have lived with FSHD since I was a kid. It progressed slowly and for a long time, only my facial muscles were affected.
Photo courtesy of Sarah Bennett Day 12 of 30 This is Sarah Bennett’s (@muscle_dystrophy_mom) story: It’s tough to choose just one subject of significant importance to me because of my many different experiences living with muscular dystrophy, but I have decided to focus on mental health. Since…
Photo courtesy of Moira Matthews Day 11 of 30 This is Moira Matthews’ story: My name is Moira Matthews. I am a certified occupational therapy assistant working in Wilmington, North Carolina, with Genesis Rehab Services, providing mobile outpatient services called Vitality to You. I am a lover of…
Recent Posts
- I rarely answer honestly when asked, ‘How are the boys doing?’
- Trial testing gene-editing therapy PBGENE-DMD gets FDA green light
- A winter blizzard had me cooped up at home for days
- New Phase 3 trial of Duchenne gene therapy SGT-003 to begin dosing
- The rule of 10 helps me navigate bad days with LGMD