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    • Duchenne: Shalom’s Lifelong Partner-in-Crime — Shalom Lim Ern Rong
    • Muscle Memoirs: LGMD Experiences — Patrick Moeschen
    • Party of 9 — Betty Vertin
    • Working Through the Process — Robin Stemple
    More Perspectives
    • Bloom – Prudence Jones
    • Hawk’s-Eye View – Hawken Miller
    • Hidden Truths – Adeel Rizvi
    • Of Dragons and Dystrophin – Andy Rusch
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    Advocacy partners

30 Days of MD

Day 20 of 30 Days of MD: Recognizing Disability Rights

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Day 19 of 30 Days of MD: Hurricane Prep and MD

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Day 18 of 30 Days of MD: Duchenne and Traveling the World

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Day 17 of 30 Days Of MD: Assistive Technology Professional

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Day 16 of 30 Days of MD: The Speak Foundation

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Day 15 of 30 Days of MD: Disability Rights and MD

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30 Days of MD: Caregiver Appreciation

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30 Days of MD: Writing as Coping Mechanism

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30 Days of MD: LGMD Awareness Day

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Day 11 of 30 Days of MD: Fashion Designer with LGMD

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Recent Posts

  • I rarely answer honestly when asked, ‘How are the boys doing?’
  • Trial testing gene-editing therapy PBGENE-DMD gets FDA green light
  • A winter blizzard had me cooped up at home for days
  • New Phase 3 trial of Duchenne gene therapy SGT-003 to begin dosing
  • The rule of 10 helps me navigate bad days with LGMD


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