I started writing for my high school newspaper, The Bolt, when I was 17. Now 24, I’m telling the stories of people who make an impact in their rare disease community for Bionews, the publisher of this site. Over the last seven years, I’ve had the privilege of conducting…
Hawk's-Eye View - a Column by Hawken Miller
When I was a toddler, my parents would sit me up in my highchair in front of a big bowl of broccoli. It was around dinner time, while they were still preparing the food, so I was a very hungry baby. I could only eat the rest of the meal…
I came down with a nasty cold two weeks ago, and even though I was sick, felt terrible, and knew I needed to rest as much as possible because I also have Duchenne muscular dystrophy, I was still judging myself for not working toward my looming deadlines. I’ve…
Last week, I traveled to the headquarters of my employer, Bionews, the publisher of Muscular Dystrophy News Today. The trip took me from Newport Beach, in Southern California, to Pensacola, in the Florida Panhandle. While it was an interesting experience, it wasn’t without its challenges, especially with Duchenne…
I recently started watching a YouTube channel called Yes Theory, which inspires people to “seek discomfort.” The cast of the video blog often go on trips to remote parts of the world, perform on the street, or push their bodies to the limit, all in the spirit of being…
My life has been quite busy lately. Between starting my full-time job at Bionews, helping produce two Call of Duty League YouTube shows, working on other freelance journalism projects, and managing my health, which gets progressively worse because of Duchenne muscular dystrophy, I’ve become a bit overwhelmed. When…
Transitions are a part of life. We go through puberty as teenagers and our bodies change. We move out of our parents’ place to go to college or start a new job. We get older, some of us have kids, and our perspectives change. When…
On April 1, I started full time at Bionews, the publisher of Muscular Dystrophy News Today, writing feature stories about the rare disease community. Since I first started writing articles in December 2019, my work has ranged from interviews with advocates, CEOs, and…
I sometimes like to imagine a life in which I don’t have Duchenne muscular dystrophy, a progressive muscle-weakening disease. No boundaries would hold me in. I could travel anywhere I want and write an unlimited number of stories. This is an…
This is the dirtiest column I have ever written because it’s about poop. And whether you love it or hate it, it’s an especially relevant topic to the Duchenne muscular dystrophy community. Sitting in a wheelchair for long periods and experiencing overall muscle weakness can…
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