Every year, many of us commit to resolutions for the new year, but often we find ourselves giving up on them within the first few months. Sometimes even sooner. These new resolutions seek to empower us to make changes in our lives, but it is not how we think about…
It’s good to have you back to my column, “Hidden Truths.” I appreciate everyone who takes the time to read my reflections on life with limb-girdle muscular dystrophy. As I was considering what to write this week, I received a wonderful comment on a recent column from a…
Welcome back to my column, “Hidden Truths.” While I tend to write that at the beginning of most of my columns, I genuinely appreciate you checking in. You consciously decided to click on the column and made it a part of your day. You could have chosen thousands…
Welcome back to “Hidden Truths,” a column that seeks to offer an honest look at living with a neuromuscular disease. I not only like to present my own experiences, but also to challenge others to examine themselves and think outside the box. I believe that by questioning and searching for…
Over the past few weeks, several people have asked me how I can be in a good mood nearly all the time when so many issues surround me. So, this week, I want to elaborate on my thought processes, and try to explain positive thinking, why I am the way…
Welcome back to “Hidden Truths.” Over the past two weeks, I’ve had several meaningful discussions about what it means to have a neuromuscular disorder. Accordingly, this week I wanted to get a bit more personal and answer a question brought up by a friend: “How did it feel growing…
Welcome back to “Hidden Truths,” a column where I seek to describe and express my feelings about my diagnosis of limb-girdle muscular dystrophy. This week, I originally wanted to continue the discussion about questioning everything about my diagnosis and care management, which I discussed last week. However, because…
As I’ve described in my previous columns, knowledge is power. I feel very fortunate to have received my diagnosis of limb-girdle muscular dystrophy when I did. I was beginning physical therapy school and had just come to appreciate the power of questioning and research. That said, the topic of…
I wanted to expand on my last column by delving into the types of questions we should ask when presented with a new ailment, such as muscular dystrophy. I’d like to start with an anonymous quote: “It ain’t what people don’t know that hurts them, it’s what they know…
This week, I wanted to visit the reason I started writing this column. However, to describe that rationale, I need to revisit the moments soon after I received my diagnosis. I was diagnosed with limb-girdle muscular dystrophy (LGMD) in the late 2000s. I remember my primary physician calling…
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