This patient advocate's journey is full of emotional highs and lows as she navigates raising three sons with Duchenne muscular dystrophy. Despite the uncertainty, every victory, no matter how small, is a celebration of resilience and hope.
DMD life journey
Recent Posts
- MDA 2026: ‘Body of evidence for Elevidys continues to grow’
- Living with Duchenne grants me unique insight into accessible design
- MDA 2026: FDA decision on deramiocel for DMD expected by August
- MDA 2026: Dyne therapy boosts strength, cognition in DM1
- MDA 2026: Duvyzat shows DMD benefits even at lower dose levels