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Recent Posts
- Lessons that come from a long journey with DMD
- DYNE-251 leads to improvements in motor function in DMD: Update
- Noninvasive qMRI seen to detect muscle changes in LGMD type R1
- How I’ve gotten through a busy season in the life of my family
- Marking ’30 Days of Strength’ for MD Awareness Month this year
- Making memories on what was likely my last family vacation
- RAG-18 granted FDA orphan drug status for Duchenne, Becker MD
- Living on campus is new territory for one son with DMD
- Elevidys, one year later: ‘It’s no longer just about coping with DMD’
- For Duchenne survivors, dealing with grief provides us strength