Joint care for Duchenne muscular dystrophy
Joint pain and stiffness are common in Duchenne muscular dystrophy and can affect daily life. Strategies like exercise, orthotics, and diet can help manage symptoms and support long-term mobility.
DMD life journey:
Empowering every stage
Navigating Duchenne muscular dystrophy (DMD) is a journey with challenges at every stage. From recognizing early signs to managing daily life, understanding genetics and heart health is key. With the right knowledge and support, you can take informed steps toward better care.
Watch: Partners in progress
Read: Empowering every stage
United in care: Your DMD medical team
Managing Duchenne muscular dystrophy requires a team of specialists to address its complex needs. A coordinated approach helps individuals and caregivers navigate treatment and daily life more effectively.
DMD caregiving: Finding your inner strength
Caring for a loved one with DMD is both deeply rewarding and uniquely challenging. Prioritizing your own well-being can help you stay resilient, prevent burnout, and provide the steady, compassionate care they need.
From DMD diagnosis to action: Understanding the early signs and next steps
Early detection of Duchenne muscular dystrophy enables prompt intervention to slow disease progression. After diagnosis, a dedicated care team guides you through tailored treatment and supportive strategies.
Managing the Day-to-Day: Tips for DMD Caregivers
Caring for a loved one with DMD comes with challenges, but a structured routine, strong family support, and self-care can help ease the journey. Practical tips on daily tasks, care coordination, and community support can make a meaningful difference.
The genetics of DMD: What it means for your family
Duchenne muscular dystrophy is a genetic condition passed through families, primarily affecting males. Genetic testing and counseling can help families understand risks and explore reproductive options.
DMD and the heart
People with DMD are at high risk for heart problems, making regular cardiac monitoring essential. With early intervention and proper management, heart health can be protected to improve quality of life.
How I’ve learned to embrace the highs and lows of caregiving
This patient advocate's journey is full of emotional highs and lows as she navigates raising three sons with Duchenne muscular dystrophy. Despite the uncertainty, every victory, no matter how small, is a celebration of resilience and hope.