Duchenne: Shalom's Lifelong Partner-in-Crime — Shalom Lim Ern Rong

This month, I had the rare opportunity to meet Dr. Brenda Wong, a native Singaporean and a professor of pediatrics and neurology at the University of Massachusetts Chan Medical School, where she was the founding director of its Duchenne Program. My parents had heard Dr. Wong’s name since…

Note: This column contains spoilers for the series finale of the Netflix TV show “Dead to Me.” As I write this, the date is April 3. I’ve just survived the longest and most helpless week of my life. Two Sundays ago, my support worker, Glenda, suddenly fell ill from…

On the evening of March 8, I was mindlessly scrolling through my Facebook feed when I stumbled upon a public post from Singaporean Paralympic swimmer Sophie Soon, who uses a guide dog for help with her visual impairment. In the post, which has now been deleted, Soon expressed grievances with…

On Feb. 18, I attended an ART:DIS event at the Singapore Art Museum (SAM) to kick off this year’s Arts and Disability Forum. It was a panel held with Project Art Works (a neurodivergent artist collective based in Hastings, England) to discuss the creative and diverse value…

Note: This column includes thoughts about suicide. Resources for help are listed at the end. On the verge of this new year, I was struck by what felt like a surrealistic event. It was a surprise I never expected, coming just three days before the end of my tumultuous 2022.

On Dec. 4, I performed British singer-songwriter Calum Scott’s 2017 pop ballad “You Are the Reason” at a live caroling session with ART:DIS, the first organization in Singapore to pioneer the artistic development of members of the disabled community. The performance was part of the annual Enabling Lives…

On Nov. 27, I attended a live performance by ART:DIS musician Sky Shen, an old friend from the Muscular Dystrophy Association (Singapore) (MDAS). The show featured his recent debut EP, “Wheel You Love Me?” — a collection of songs he wrote about his experiences with…

On Nov. 10, I delivered my second poem, “Breaking the Fourth Wall,” at an engagement by ART:DIS, the first organization in Singapore to pioneer the artistic development of members of the disabled community. The goal of ART:DIS is to unearth the creative talents and diverse gifts of disabled Singaporeans…

I celebrated my 27th birthday on Oct. 25 and feel tremendously blessed to have made it this far, especially with Duchenne muscular dystrophy. Duke (my pet name for Duchenne) has taken me through many arduous trials and difficult times, including feeling marginalized within my own disability community. Still,…

Warning: This column contains spoilers for the Netflix musical film “tick, tick…BOOM!” In my last column, I wrote about my relationship with the concept of crip time, which addresses how time works differently in the lives of disabled people. Crip time has enabled me to accept who I am…

Note: This column includes thoughts about suicide. Resources for help are listed at the end of the column. I delivered my first research presentation at the College of Alice & Peter Tan (CAPT) at the National University of Singapore (NUS) on Sept. 17. In March, my favorite lecturer from my…

Last week, I started a new job as a part-time community partnerships executive with K9Assistance, Singapore’s first assistance dog advocacy organization. Assistance dogs are service dogs trained to help disabled people perform tasks to mitigate their impairments. As a Duchenne muscular dystrophy survivor, I’ve always been intrigued…