• Events and Activities

  2019 MDA Engage ALS Symposium Event

  Posted by Danielle "Dani" Liptak on March 26, 2019 at 8:07 am

  Saturday, May 18, 2019 in Quincy, Massachusetts.

  There is no cost to attend the event, however, registration is required.
  Register by May 15th at https://www.etouches.com/als2019

  • Keynote Presentation – Best practice in Clinical Care of ALS: Dr. James Berry, MPH, Massachusetts General Hospital
  • Research & Clinical Trial Review for ALS: Dr. Robert Brown, DPhil, University of Massachusetts Medical School
  • Drug Development Round Table: Moderator – Dr. James Berry, MPH, Massachusetts General Hospital
  • Technology & Supportive Care: Dr. Sabrina Paganoni, PhD, Massachusetts General Hospital.  John Costello, MA, CCC-SLP, University of Massachusetts Medical School and Massachusetts General Hospital.
  • Mental Health Considerations: The ALS PACT Program
  • National ALS Registry: Agency for Toxic Substances and Disease Registry (ATSDR)
  • MDA Spotlight: Melissa Immomen, LCSW

  Danielle "Dani" Liptak replied 5 years, 1 month ago 1 Member · 0 Replies

  • ALS
  • events for MD
  • events for muscular dystrophy patients
  • family and friends
  • MD events
  • MDA
  • MDA symposium
  • meet up
  • Muscular dystrophy events
  • rare diseases
  • support
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