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Tamara became a registered member 2 months ago
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Emily Carfagna (wife) replied to the topic Arm Numbness in the forum Adults With Muscular Dystrophy 2 months, 1 week ago
Yes, my husband complains of the same thing every night. When I turn him over on his right side, his arm and sometimes even both legs fall asleep. We have his legs chocked with a pillow. It helps but not completely.
But both of us complain about our hands falling asleep while holding the iphone too long when watching a movie.
I don’t have md bu…[Read more] -
Ron Forth replied to the topic Arm Numbness in the forum Adults With Muscular Dystrophy 2 months, 1 week ago
I’ve had that problem. The best help I found was investing in a “sleep number” bed. I have one that rises and tilts. Raising the back helps me from sleeping on my arms, as that can cause the numbness.
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Kimberly Reynolds replied to the topic Arm Numbness in the forum Adults With Muscular Dystrophy 2 months, 1 week ago
I have recently had more problems with my arms falling asleep. Due to an operation, I’ve had to sleep on my back all night. I use small firms pillows under each arm, with my hands lower on my belly than my upper arms. It should be comfortable, so move arms around to find your best fit. It doesn’t help all the time. I tend to have my arms fall asl…[Read more]
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Joannie Fortier replied to the topic Arm Numbness in the forum Adults With Muscular Dystrophy 2 months, 1 week ago
Hi,
I think I have the same problem. Still haven’t found how to correct that.
Besides, how do you it is related to muscular dystrophy? Is there a way to know?
Best regards
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Joannie Fortier became a registered member 2 months, 1 week ago
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Leah Leilani started the topic Saying Farewell to the Forum in the forum Adults With Muscular Dystrophy 3 months ago
To our valued and loyal members of the Muscular Dystrophy Forums, Dani and I are saddened to inform you that we will no longer be moderating the forums as of today, February 28.
Fortunately though, the forums will still be operational. We encourage you to continue to participate in topics by joining discussions and sharing your…[Read more] -
Patty became a registered member 3 months ago
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Lisa became a registered member 3 months ago
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Bilal became a registered member 3 months ago
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Carolyn Duncan became a registered member 3 months ago
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Danielle "Dani" Liptak started the topic Rare Disease Day 2023 in the forum Muscular Dystrophy Awareness 3 months, 1 week ago
Rare Disease Day is an observance held on the 28th of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families
There are over 300 million people living with one or more of over 6,000 identified rare diseases around the world. The MDA classified…[Read more]
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Mvr became a registered member 3 months, 1 week ago
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Leah Leilani started the topic Why Does Rare Disease Awareness Matter to You in the forum Adults With Muscular Dystrophy 3 months, 3 weeks ago
February is Rare Disease Awareness Month. All month long, people around the world raise their voices to educate and raise awareness with their stories regarding the lives they lead with rare diseases.
In recognition, members of the rare disease community are sharing why rare disease awareness matters to them with the help of BioNews. Each…[Read more] -
Sweetpea522 became a registered member 3 months, 3 weeks ago
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Danielle "Dani" Liptak started the topic Disability/ADA Lawyers in the forum Mobility Aids and Medical Equipment 3 months, 3 weeks ago
I had an accident last year due to a crack in the sidewalk. It damaged my wheelchair and I was injured. We asked the city of Wilmington to pay for the damages as they have downtown ambassadors that walk around and report things that need to be fixed. I was denied and the city of Wilmington was found to be NOT at fault but instead the construction…[Read more]
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Leah Leilani started the topic Creating a Culture of Broader Inclusion in Fashion and Beauty in the forum Adults With Muscular Dystrophy 3 months, 3 weeks ago
Hey everyone! Let’s discuss inclusive fashion and beauty. I came across an organization I wanted to highlight.
Guide Beauty is a company with a uniquely designed line of universally inclusive makeup applicators. As they say, “an idea born of love and challenge,” their tools can be used for the beginner learning new techniques, the profe…[Read more] -
John Tusha became a registered member 3 months, 4 weeks ago
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Yulandi became a registered member 3 months, 4 weeks ago
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Danielle "Dani" Liptak replied to the topic Traditional Family Values and Disability in the forum Adults With Muscular Dystrophy 4 months ago
It is hard for many to be seen as a caregiver because women mostly do it. I have seen this change with people becoming more accepting of the changing gender roles. Unfortunately, many in power and those getting older are not as keen on the changing roles of males, females, etc. I think most people have to look past the roles and ask if it is not…[Read more]
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