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Lee Carter and
Garry are now friends 1 year, 9 months ago
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Danielle "Dani" Liptak and
Garry are now friends 2 years ago
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Garry replied to the topic Smashing Stereotypes About People with Muscular Dystrophy in the forum Adults With Muscular Dystrophy 2 years, 1 month ago
This is the first time I got to see these videos and I really enjoyed them. Thanks for sharing this and much needed.
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Garry replied to the topic Introducing your disease while dating online in the forum Muscular Dystrophy and Dating/Relationships 2 years, 1 month ago
I still haven’t made an attempt to disclose my disability on my dating profile but perhaps I will give it a shot but here’s an interview my sister just, hope this helps!
https://nowtoronto.com/lifestyle/love-and-sex/sex-and-dating-with-a-physical-disability/
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Garry replied to the topic Minimizing fatigue in the forum Muscular Dystrophy Tips, Tricks and Advice 2 years, 1 month ago
Awe thanks Dani that means a lot. I don’t really enjoy taking naps because it may mess up my sleeping schedule. If I really need to nap its because I didn’t sleep well. Most of the time I just need to lay down and let my back rest since I sit a lot. It really helps me reset my back so when I do need to stand for a bit, it makes a difference.
To…[Read more]
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Garry replied to the topic Apple/ Samsung/ Amazon in the forum Mobility Aids and Medical Equipment 2 years, 1 month ago
I wish I had insurance lol but I do have family and relatives who don’t mind pitching in if I decide to get one but I want to be sure that I find a smartwatch that suits my needs.
I also have a Samsung. Been using one for the last 10 years almost lol. If it comes down to the Apple watch then I might have to switch to an iPhone ahh.
That’s…[Read more]
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Yeah the guardian doesn’t do anything but connect me to someone who will then call for help and there is also a GPS locator in it. Then the EMT’s or whoever comes to help me get up, goes to my front door, there is a lock box that they have the code for and can get into the house.
I am glad you have a strong family support system, it is more…[Read more]
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Garry replied to the topic Apple/ Samsung/ Amazon in the forum Mobility Aids and Medical Equipment 2 years, 1 month ago
I would love to get an Apple watch since it does have the best fall detection sensor on the market but the price is something that makes me think twice before buying and I also need an iPhone which I don’t have. From what I’m reading all it does is detect the fall, ask you if you’re okay and if not it will call the person you have as an emergency…[Read more]
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Garry replied to the topic Minimizing fatigue in the forum Muscular Dystrophy Tips, Tricks and Advice 2 years, 1 month ago
I find that being well rested makes a huge difference. Also taking breaks or a pauses to catch your breath helps too. Find a pace that works for you and paying attention to your body will come a long way on how you perform throughout the day. Also, make sure you have a nice meal before you start your day because I find myself feeling weak and…[Read more]
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Garry replied to the topic Winter time: ice, snow, sidewalks in the forum Muscular Dystrophy Tips, Tricks and Advice 2 years, 1 month ago
I use a Power wheelchair and going to the mall is what I find enjoyable during the winter because it’s warm, your in a social setting, ground is smooth for the wheelchair lol, there is always a washroom available if you need to use. I live in a big city so there’s a service that does door to door and I make sure my destination is in a mild to…[Read more]
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Garry replied to the topic Vitamins and supplements in the forum Diagnosis Information and General Questions 2 years, 1 month ago
The supplements I take is Multi-Vitamin (chewable), Vitamin D, Vitamin B/C, Creatine and CoQ10 which I recently started taking and I noticed a difference in my mood and energy level. I also like drinking water with lemon if that counts haha just cause it really helps with my general feeling and mental state plus there are many benefits. After…[Read more]
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Garry posted an update 2 years, 2 months ago
Thanks for accepting! -
Garry posted an update 2 years, 2 months ago
Thanks for accepting! -
Garry and
Leah Leilani are now friends 2 years, 2 months ago
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Garry posted an update 2 years, 2 months ago
Hey Leah! Glad to meet yah! Thanks for sharing your story! I have LGMD2B/Miyoshi myopathy. I will reach out when I have any questions when I get a chance to go through the forum! =]
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Garry posted an update 2 years, 2 months ago
Hi Dani, Nice to meet you! Thanks for having me. I have LGMD2B/Miyoshi myopathy. I will definitely reach out when I have questions! -
Garry became a registered member 2 years, 2 months ago
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Hi Gary! My name is Dani Liptak and welcome to the MD news forum! I have a form of MD called facioscapulohumeral dystrophy! Please feel free to reach out to me about anything!
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Hi there Garry. It is my pleasure to say hello and welcome you to the Muscular Dystrophy forum. My name is Leah Leilani. I am one the moderators here on the forum alongside Dani. I was diagnosed at age nine with a rare form of Muscular Dystrophy called Mitochondrial Myopathy.
Feel free to participate in any of the forum discussions and share your…[Read more]
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