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      Leah Leilani

        “If your child is facing a diagnosis, I know the journey may seem scary and daunting, and it may not be the life that you had envisioned or hoped for, but it is still a beautiful life. Perhaps it is even more special.”

        Introducing Prudence Jones to the Muscular Dystrophy News family. Prudence is the mother and caregiver to her son, Alfie who has LAMA2 MD. Going forward as a columnist, she hopes that by sharing parts of her life she can help to increase knowledge and change perceptions with her articles.

        Read her very first article by clicking here.

        What was it like for you when your child was diagnosed? Was it a happy moment when you finally received it or was it melancholy?

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