Leah Leilani

It’s almost that time of year again! Yes, that’s right, Muscular Dystrophy Awareness Month is just around the corner! That means that Dani and I will begin recruiting patients, advocates, and caregivers to be featured on our website as well as MD News’ Instagram account for 30 Days of MD! All we will need from you is a 400 word or less short story…[Read more]

“Although I am still very reluctant to ask for help — primarily because I do not want to feel inadequate — I have gotten better at it. I would recommend starting small, whatever that may be, and then slowly building up to something more.”
In the past, Adeel feared his limiatations, making him feel more like a burden. But, he is learning to shif…[Read more]

For Disability Pride Month, we at Bionews are sharing the voices of our advocates and employees who are also members of the disability community. We introduce you to Brittany Foster, Bionews’ HR Coordinator and Pulmonary Hypertension Columnist.
“In honor of Disability Pride Month this July, when I stop to think about what I am proud of, it fee…[Read more]

Disabled is not a bad word and neither is it a bad thing to be disabled but, for decades people have believed and internalized the myth that it is. I have experienced this ableistic perspective first hand, even in places where I should feel the most accepted such as at church or at a hospital clinic. The one thing that I think is more disturbing…[Read more]

“While I am no longer learning about learning continuums, teaching frameworks, and new curricula, one thing hasn’t changed: I am a lifelong learner.”
Although Prudence is no longer teaching at primary school, constantly learning new things hasn’t ceased since her son, Alfie’s, diagnosis. Read her tips to remain organized as a parent to a disable…[Read more]

“Through my diagnosis of limb-girdle muscular dystrophy, I have become more pragmatic in accepting myself and my purpose in life. As I recognize my weaknesses and their effects on my current and future plans, I change and adapt. Please know that while death and change are unavoidable, they are not equivalent; change is not death. On the c…[Read more]

This month, is known as Disability Pride Month. Disability Pride Month was created to commemorate the passing of the Americans with Disabilities Act law that was signed by President George H.W. Bush in July 26, 1990. July is an opportunity for all those with disabilities to celebrate who they are and the beauty of diversity.
What is one thing…[Read more]

What music genre do you listen to the most? Is your music taste something easy to jam out to like Rock, Country or Pop? Are you more drawn to unique sounds like Indie, Ska, Electronic or Metal? Or perhaps your most intrigued by Classical, Blues and Jazz? Does your music taste depend on what mood you’re in?

Now that most states have opened up, lots of doctors are going back to their offices. This begs the question, what will become of Telehealth calls? Personally, I have loved having virtual doctor visits. I don’t have to wake up early, schedule my day/week around the appointment or even change out of my pajamas. I hope that doctors continue to m…[Read more]

Do you and your family refrain from shooting off fireworks for the 4th of July because you or someone you know is, or was, a U.S. Army Veteran? Does it bother you that this American holiday is celebrated with explosive devices? What are some alternative ways that you commemorate Independence Day?

IVIG (Intravenous Immunoglobulin) infusions are used to treat those with weakened immune systems to fight germs and diseases that they might otherwise be at risk to. This treatment is done by delivering donated antibodies from plasma to the patient through an IV. If you get sick, have infections often or have an autoimmune disease, it might be a…[Read more]