Leah Leilani

Have you tried to do talk therapy with a psychiatrist? Has it been helpful for you?
I have attempted talk therapy before but never found that it was very helpful for me. Perhaps I didn’t try it for long enough or the therapist wasn’t a good fit. It can be hard to find and build a connection with a psychiatrist. I do, however, have a psy…[Read more]

Do you think of your wheelchair as being comfortable or not?
I don’t associate comfort with my wheelchair and never have. Although, it isn’t particularly uncomfortable, I can’t wait to get out of my chair after being in it for several hours.

It was announced the other day that Keisha Greaves is the new Muscular Dystrophy Association National Ambassador.
Keisha, a fashion entrepreneur and neuromuscular disease advocate, has a type of muscular dystrophy called Limb Girdle MD. She is also the CEO of the clothing brand Girls Chronically Rock.
Check out this article on MD News about…[Read more]

Have you ever been so constipated that you needed an enema or suppository? Where you able to finally relieve yourself and find a daily laxative to prevent constipation? What laxative are you now taking and have you needed an enema or suppository again?

How do you carry items while shopping? Do you get a basket or attempt to use a cart? Do you pile everything on your lap and foot rest and just pray that nothing falls?

“I can be whomever I want and make my character’s body do what it wants because Duchenne muscular dystrophy doesn’t exist in the world of D&D. Neither do the everyday struggles I have to face because of it. It’s one of the best escapes from reality I’ve found during the difficult time of the pandemic.”
Hawkin has discovered a way to escape from…[Read more]

What do you like most about the Spring season and what are you most excited about?
One of my favorite things about Springtime is the hummingbirds that lay their eggs in nests hidden in the trees in my backyard. I’m also looking forward to sunny weather and getting more vitamin D.

Are your parents supportive and helpful when it comes to your health and your life with MD? Do they help you attain a happy, successful lifestyle while prioritizing your health and wellness? Would you consider your parents to be your advocates and part of your support system?

What are your plans for this Easter Sunday? Are you vaccinated and able to attend church or be with your extended family? Will you be cooking and eating any special food?

“All of the therapies, pieces of equipment, stretches, and exercises are incredibly important, but the most important thing is Alfie’s happiness.”
Alfie’s mother, Prudence writes about her and her son’s daily routine and the struggle to find opportunities to balance the joys of life and medical necessities. Read her new article “What a ‘Typical’…[Read more]