Leah Leilani

Francesca Perazzola is a patient columnist for Bionews Services Friedrich’s Ataxia site. During the Coronavirus lockdown she has been posting expertise routines that help her maintain muscle strength on both her social media and YouTube Channel “FightingFA.”
Have you been doing physical therapy and exercises at home to maintain you flexi…[Read more]

June is Pride Month. Are you a Lesbian, Gay, Bisexual, Pansexual, Transgender, Queer, Asexual, Intersex, Gender Fluid, Androgynous or prefer another term for your sexuality or sexual identity? Do you know someone who is part of LGBTQIA? How are going to show your Pride or support for Pride this month?

Are you graduating this year? If so, is it from high school, college or graduate school? All of us here on the Muscular Dystrophy Forum join in congratulating you on your outstanding achievement and wish you the best going forward!

How are all of you handling the current state of the world? Is your mental health unstable due to the prevalent and persisting issues in the black community, the U.S. economy and with Coronavirus? Tell us what you’re doing to stay positive and/or assist in change.

Hello members of the Muscular Dystrophy Forum. Dani and I are thrilled to announce that the forum is back and active after a two and a half month hiatus!
We welcome all our new members that have joined the forum during our absence and remind you that the MD forum is a safe place  to share experiences, receive advice and encourage others. We are…[Read more]

Do you and your significant other live in separate homes? Have you decided to remain distant during the Coronavirus outbreak?
Some ideas for practicing social distancing and still creating a “date night” are:
•ordering from the same restaurant and eating your food together while video chatting
•watching the same movie while video chattin…[Read more]

What YouTube channels have you been binge watching during the COVID-19 quarantine?
My favorites disabled YouTubers are, of course: Squirmy and Grubs, Molly Burke, Amy’s Life, Sitting Pretty Lolo and Jessica Kellgren-Fozard
For cruelty free and sustainable living I watch: Shelbizleee, Use Less, Style Apotheca and Gittemary Johansen.
For Art…[Read more]

MD News’ very own Hawken Miller wrote about how his year of writing for Muscular Dystrophy News Today has allowed him to discover more about himself and explains his experience with divine intervention that lead him to where he is today in his latest article “Celebrating My First Year of Writing Columns.”

Achieving success in the standard ways such as in a work place or through education is not always attainable for those with disabilities and chronic illnesses. But, by creating small goals and prioritizing our health, we can feel accomplishment even in the most mundane things. Read more about my struggle to feel successful in my newest article…[Read more]

Have you made the decision to cancel or postpone your doctor appointments or medical procedures due to the outbreak of the Coronavirus? Are there any treatments or appointments that you can’t miss like for example Spinraza injections? How do you plan to protect yourself when in a clinic or hospital environment?

What precautions are you taking in order to protect yourself from the Coronavirus?
My family has been wiping down all the doorknobs, remotes, phones and faucets in our house. We also use paper towels instead of towels. I happen to have a phone sanitizer I got for Christmas so that has come in handy. If we absolutely have to go somewhere we push…[Read more]