Leah Leilani

To our valued and loyal members of the Muscular Dystrophy Forums, Dani and I are saddened to inform you that we will no longer be moderating the forums as of today, February 28. 
Fortunately though, the forums will still be operational. We encourage you to continue to participate in topics by joining discussions and sharing your…[Read more]

February is Rare Disease Awareness Month. All month long, people around the world raise their voices to educate and raise awareness with their stories regarding the lives they lead with rare diseases. 
 
In recognition, members of the rare disease community are sharing why rare disease awareness matters to them with the help of BioNews. Each…[Read more]

Hey everyone! Let’s discuss inclusive fashion and beauty. I came across an organization I wanted to highlight.
Guide Beauty is a company with a uniquely designed line of universally inclusive makeup applicators. As they say, “an idea born of love and challenge,” their tools can be used for the beginner learning new techniques, the profe…[Read more]

With a new year also comes a fresh start. More than any other time of year, people feel the need to change. Change their mindsets and change their habits.
People act like life will change just because it’s the start of a new year but in reality, we have to make change happen. In order to do that we have to put systems in place. We can make g…[Read more]

Although society has come a long way in defying gender roles, I feel as though there is still a narrative that marriage and having kids = happiness. Particularly for women recently.

This can be harmful to people who are unable to achieve these so-called “life goals.”

Columnist, Sherry Toh from SMA News eloquently put into words exactly how…[Read more]

Do you or someone you know want to share your Muscular Dystrophy story? Are you interested in educating people about life with a disability and helping others who are living with the same condition?

Bionews is on the lookout for another Muscular Dystrophy News columnist to add another voice to the rare disease community. Here at Bionews we are…[Read more]

I have been reflecting a lot on this past year, as I normally do in December. I realize that this year has brought with it many ups and downs.
I’ve gone on new adventures like a trip to Universal Studios Hollywood for my 25 birthday. I’ve learned news things like how to change my habits thanks to the book Atomic Habits and, oh yeah, I’ve read…[Read more]

Since turning 18, several of my pediatric specialists at the Children’s Hospital have continued to treat me as their patient through adulthood. Knowing how hard it would be to introduce a new doctor to my medical history and find one that has knowledge about my condition, I’m very thankful my pediatric doctors kept me as a patient. 
 
As of this…[Read more]