• Science, Research, Clinical Trials

  National Registry for Your Type of MD?

  Posted by Danielle "Dani" Liptak on January 26, 2023 at 11:37 am

  Every year I get a letter from the National Registry of Myotonic Dystrophy and FSHD Muscular Dystrophy Patients and Family Members. I have participated in this registry since I was diagnosed at 12. I am now 34 and hope after years of participating it will help advance research.

  Do you receive or are part of an ongoing registry having to do with your type of MD?

  Danielle "Dani" Liptak replied 1 year, 3 months ago 1 Member · 0 Replies

  • Family and MD
  • living with MD
  • MD and Clinical trials
  • National Registry for Your Type of MD
  • Patients and MD
• 0 Replies

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