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    • #18324

      Every year I get a letter from the National Registry of Myotonic Dystrophy and FSHD Muscular Dystrophy Patients and Family Members. I have participated in this registry since I was diagnosed at 12. I am now 34 and hope after years of participating it will help advance research.

      Do you receive or are part of an ongoing registry having to do with your type of MD?

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