Log In or Register to Join The Conversation!
  • Diane posted a new activity comment 2 months ago

    Dealing with changes in increased usage of the Trilogy Vent during the day. Just need some input. If you use it during the day:

    1. Do you have a portable vent?
    2. How do you adapt when toileting?
    3. How do you adapt in the shower?
    4. Do you go out?
    5. How did you emotionally deal with the. changes?
    THANK you in advance for all your input.

      • Hi Diane! I will work on finding someone to answer your questions. Those are important questions you asked and would benefit many with responses.

      • A coworker with Spinal Muscular Atrophy said “Hey, @Daniliptak! I use a Trilogy, but I usually only use it while I sleep. However, I do have a secondary portable one that I just use as a backup. Back when I got my trach and was more reliant on the vent, I kept it in a metal carrier on the back of my chair. That’s something that my DME c…

        [Read more]

    • Diane posted a new activity comment 2 months ago

      Thank you Dani for the welcome. I look forward to futurr discisdoons,
      • Diane became a registered member 2 months ago

        • Welcome, Diane! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

          • Thank you Dani for the welcome. I look forward to futurr discisdoons,
          • Dealing with changes in increased usage of the Trilogy Vent during the day. Just need some input. If you use it during the day:

            1. Do you have a portable vent?
            2. How do you adapt when toileting?
            3. How do you adapt in the shower?
            4. Do you go out?
            5. How did you emotionally deal with the. changes?
            THANK you in advance for all your input.

              • Hi Diane! I will work on finding someone to answer your questions. Those are important questions you asked and would benefit many with responses.

              • A coworker with Spinal Muscular Atrophy said “Hey, @Daniliptak! I use a Trilogy, but I usually only use it while I sleep. However, I do have a secondary portable one that I just use as a backup. Back when I got my trach and was more reliant on the vent, I kept it in a metal carrier on the back of my chair. That’s something that my DME c…

                [Read more]

            • Hi there Diane and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

              Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called…

              [Read more]

          Copyright © 2017-2021 All rights reserved.

          CONTACT US

          We're not around right now. But you can send us an email and we'll get back to you, asap.

          Sending
          or

          Log in with your credentials

          or    

          Forgot your details?

          or

          Create Account