At 17 I was told by my GP that I was lazy and needed to jog for exercise. At 25 I was diagnosed with Becker MD.

 

I use a portable urinal. I have a couple at home one is in the bathroom and one beside my bed. I also keep one in the van in a cloth wine bag which I hook on the handle of my powerchair. No one has any idea what’s in the bag.

I guess this is great for explaining to children. But the stark difference of DMD than other MDs like BMD and LGMD is that boys will die early in there 20s or 30s. I’m on a number of Facebook pages. I have Becker MD. Many parents whose child is recently diagnosed with BMD often go to DMD sites and confuse this major difference between BMD… Read more

A few years ago we had the bathroom renovated to be wheelchair accessible. We have a roll in shower and a shower bench. Through experimentation I have refined the process and at this point seems to work well.  Although I know that I will need help in the future.

I’ve had a service dog for over 15 years (two). My current dog is a black lab (Visa) trained by Dog Guides Canada and provided free of charge. I received my first service dog (Halle a golden retriever) when I was still walking. It was very helpful at picking up dropped items and barking for help if I fell. As I transitioned to a wheelchair she… Read more

I was not diagnosed with Becker MD until I was in my 20s. However, looking back I had many of the symptoms. I was not athletic, did not run well. This caused me to be bullied and teased a great deal in elementary and high school. Gym or PE was the worst! It caused me to be withdrawn and shy. I was very careful around my peers for fear that… Read more