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  • Barry Glaberman posted an update 2 years, 2 months ago

    I have undiagnosed Type MD with a possible EDMD. I am disabled because of this and can’t find answers especially from the MDA clinic. I have muscle atrophy and uncontrollable muscle spasms with no difinitive answers. Maybe someone can help.
      • Hey Barry, the moderators on this forum are Leah and Danielle. They should be in shortly to not only welcome you, they will also try to help you in any way that they can. I’m the Forums and Multimedia Director. I suffer from spinal muscular atrophy (SMA), which is in the Muscular Dystrophy family of diseases. I understand what it’s like to have atrophy and uncontrollable muscle spasms like you, because even though I don’t suffer from MD, SMA it’s still a neuromuscular disease. Both Leah and Danielle have MD, so they may be able to answer your questions much better than I could.

        I think you will find this forum to be extremely helpful. Eventually, when we get more members signing in, you will find quite a few topics relating to this particular subject, so you will also be able to receive some helpful information from not only the moderators, you will also probably get some great responses from other members who have MD like you. Please let us know if there’s anything that we can do for you, because our job is to make sure that we take care of our members. Take care – Michael

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