Ralph Yaniz

I could be wrong but I thought it was more an issue of eating rather than brushing. I know for me one side is definitely used more and therefore there is more normal wearing out of teeth. And I know I have a tendency definitely to chew more with one side of my mouth.

Great! Glad you’re both back! Our fearless leaders 💪🏽

Woohoo good to see you all back 😊

I agree this will be difficult and most everyone I know will not be jumping into normal activity. I think back to January to mid March when this virus must have been incubating and then exploded as people began to get sick. It took two to three months of no sporting events or business travel or conferences. No Disney or Vegas. No bars and pubs and…[Read more]

As a matter of fact, today. I need to go back for the six month post-testing for a clinical research study I’m in. It will mean about four hours of testing. MRI, bone scan, blood work, strength testing, walking test, etc. I’ll be in a mask and in an area of the hospital that’s been shut down for a couple months but it’s a big hospital complex…[Read more]

I was not aware of this book but I’ll be delving into it. Sounds like great stuff.

This is good, and very important. I founded the LGMD2L Foundation and we maintain a registry. But we haven’t reached this level yet. I would love to look for partnerships to do something like this.

I try to break it up. I might do a little stationary bike to get my legs going. Or sometimes I do small walking increments in my condo. Maybe walk 500 steps in some circles. Rest. Repeat. I also have some small dumbbells that I can do some lips with my shoulders and arms.

I’m doing ok and my column out in a couple hou te talks about how I’m living, learning and thriving during this pandemic. I hope we are a step closer each day but we need to plan for some weeks and possible months of this still ahead. Hope you are all well and safe.

People are unique. We all bring different life experiences to our decisions.  People with disabilities are not one size fits all. We are as unique as everyone else. I lived 47 years without symptoms of my MD. If I had a choice I’d say yes, let’s go back to my functioning prior to MD. But I can say that in some ways I’m living my best life now. L…[Read more]

Interesting column and I will offer some similar ideas in terms of opportunities during this time. I truly believe that so many of us with disabilities and physical limitations have gone through some of what society at large is going through today with how we are living in the bubble of social isolation.

Thank you, and I just learned it will be a week from tomorrow!

Great tips, Kevin. My column tomorrow will focus on a similar bent and look at living, learning, thriving when we need it most. This is a great time to stay safe and to do some reflection on life. I hope everyone can use this opportunity to grow.

Just my personal opinion but I think we are on the cusp of major breakthroughs in genetic science. Whether it’s our knowledge of gene therapy and how to achieve it, or technologies like CRSPR, we will see some big things ahead.

This was fabulous. I saw it and loved it. In some of my columns I’ve talked about advocacy and effecting change in society. Positive social change. These great group of individuals with disabilities did that. We can learn a lot!

Thanks for your reply. It sounds like things are going very well for you with your latest choice. I think what you mention is key, we are all different. For me, I am still able to go out and walk, using my hiking poles, and maybe walk up to a mile depending on the terrain. I hope this chair I just purchased works for me for a few years. I will…[Read more]

I like this. I’ve written a few columns also on goal setting and being realistic. We can all have great success in improving our day to day lives. Appreciate this.

Haha 💫

I’ve already alerted Leah I’m definitely a columnist but not a communist haha. Hope you all can read column. Would love feedback, as always.

Leah, I agree with you and I don’t think we need to wait for more cases to come forward. We need lawyers who can start the process now and once it is moving forward we can advertise it and trust me more people will come out. And it’s not just Uber trust me.