[Tracy Myall]

I suffer from major anxiety. I have always been anxious, but I find that the last 4-5 years it has gotten much worse. During this time I started experiencing difficulties with my health, neuromuscular scoliosis being the main issue, which led to my discovery that I had MD. I suffer from chronic pain which has gotten worse after surgery to correct my scoliosis and a recent knee replacement surgery. I also worry about my diagnosis because I just can’t find that much about my specific condition Myofibrillar myopathy. My body hurts all the time, and I don’t know how much worse it will get as time passes. I also don’t have anyone who can help me or look out for me as I get older, I’m currently 57, which scares me as well. I don’t have any children and my sister lives too far away to visit often. I just don’t know what to expect in my life and it’s always on my mind. I’m better when I keep busy, but being down recuperating from these surgeries, one after the other, and now being sheltered because of the COVID-19 situation gives me more time to think and worry. I honestly wish I knew more about what my future would bring so I could plan for it if possible. I had a Therapist but haven’t seen her recently due to financial constraints (she doesn’t take insurance). I think finding someone who does take insurance and who could see me on a more regular basis might help. I really feel like I need to talk to someone who can understand what I’m going through. I just feel so alone sometimes.