@torredeflot
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Pau replied to the topic Dating Someone Without a COVID-19 Vaccination in the forum Coronavirus (COVID-19) and MD 1 year, 1 month ago
It depends on who would be someone and for what.
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Jeff and
Pau are now friends 1 year, 2 months ago
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Pau and
Leah Leilani are now friends 1 year, 3 months ago -
Pau and
Danielle "Dani" Liptak are now friends 2 years, 6 months ago -
Pau posted a new activity comment 2 years, 6 months ago
You should have a lot of patience with me for the lack of knowledge in the language and how the forums work.
Thank you.
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Pau posted a new activity comment 2 years, 6 months ago
Hi Dani,
I am also a patient with FSHD, like you. With only one important difference I’m very older than you.
My problems started 12 years old also. But then, there were no genetic diagnoses and specialists speculated with different types of muscular dystrophies. Of course, there wasn’t type of treatment, or anything like that. They only…[Read more]
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Thanks for sharing, Pau! Where do you live? Can you tell me a little about yourself?
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Pau posted a new activity comment 2 years, 6 months ago
Hi Leah and the others members of the forum community.
I appreciate your welcome. Thanks.
I nice to meet you.
I’m a catalan and I only speak english a little, but I can understand you enough well.
I am very interested in possible treatments against different muscular dystrophies, because any treatment that can help a type of muscular…[Read more]
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Pau became a registered member 2 years, 6 months ago
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Hi there Pau. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed at the age of nine through a muscle biopsy.
Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you. The…
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Hi Leah and the others members of the forum community.
I appreciate your welcome. Thanks.
I nice to meet you.
I’m a catalan and I only speak english a little, but I can understand you enough well.
I am very interested in possible treatments against different muscular dystrophies, because any treatment that can help a type of muscular…
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Welcome Pau! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Hi Dani,
I am also a patient with FSHD, like you. With only one important difference I’m very older than you.
My problems started 12 years old also. But then, there were no genetic diagnoses and specialists speculated with different types of muscular dystrophies. Of course, there wasn’t type of treatment, or anything like that. They only…
-
Thanks for sharing, Pau! Where do you live? Can you tell me a little about yourself?
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You should have a lot of patience with me for the lack of knowledge in the language and how the forums work.
Thank you.
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