Hawk’s-Eye View — Hawken Miller

In my last column, I wrote about the increasing difficulties I’m having safely navigating my home using the “furniture surfing” technique. I wondered whether it was time that I break out the walker…

On Thursday, Nov. 17, I went to bed with what I thought was a bad stomachache. It felt like someone was sticking a knife in my left flank. Then I realized: This was undoubtedly…

Adult life is overwhelming. There’s so much to do. You have to hold down a job, pay rent or mortgage, prepare for retirement, spend quality time with those you love, learn new skills, find…

“We rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our…

The Duchenne muscular dystrophy community is reaping the benefits of innovations in rare disease diagnosis, research, and care. That’s part of what I learned last week while training to cover rare diseases with…

I never thought that being diagnosed with a rare muscle condition called Duchenne muscular dystrophy would one day lead me to Budapest, Hungary, but life always surprises me. A few weeks ago,…

I face many obstacles because of my Duchenne muscular dystrophy. Some of them are large, like preparing for the day when I’m unable to bear my own weight. Some of them are small, like…

Two weeks ago, I tested positive for COVID-19, which can be especially dangerous for people with Duchenne muscular dystrophy. My lungs aren’t as strong as other people’s lungs, and taking a…

Every second of our existence is like a puzzle piece falling into place on a seemingly endless dining room table. Some pieces are good and happy. Others are sad and dejected. Even the smallest,…

Sometimes we need wake-up calls in life. They are near misses that tell us we need to make a change, approach a problem differently, or alter how we interact with others. These can take…

This week’s column will be slightly different than normal. I reached out to fellow Muscular Dystrophy News Today columnist Betty Vertin, who has three boys with Duchenne muscular dystrophy (DMD), ages 16,…