Advocacy Partner: Muscular Dystrophy Association
About the Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For nearly 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
For support, guidance, and resources please visit: MDA Resource Center
By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email: [email protected]
Upcoming events
- There are no upcoming events.
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- DMD gene therapy GNT0004 set to enter Phase 3 trial in Europe, US
- Taking control when living with limb-girdle muscular dystrophy
- Changes this year helped me learn my limitations as a caregiver
- Regenxbio starts pivotal trial testing DMD gene therapy RGX-202
- How I experienced inclusion (and didn’t) during my education
- New technology may inform effective MD gene therapies: Study
- Being mindful of kidney stones while living with DMD
- FDA OKs trial to test gene therapy candidate in LGMD children
- Sarepta stops development of exon 51-skipping therapy for DMD
- Coping with grief and the day-to-day life of LGMD