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Dealing with Duchenne physical therapy frustration

Riketa Smith is a certified medical assistant at Duke University Hospital and formerly served as the Pediatric Neuromuscular Program co-coordinator at Lenox Baker Children’s Hospital, where she worked with Duchenne families. She empathizes with physical therapy frustration, but shares why it’s important to stay on top of exercise even when it feels like a losing battle.

Transcript

I know that physical therapy can be very frustrating for Duchenne patients. Any neuromuscular patient, really. But it’s important to remember that they’re there to help you maintain function.

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Preventing contractors, keeping your strength up. All they want is to make sure that you can continue to do the things that you love to do, and that you feel good when you’re doing it.

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More videos

Insisting on seeing all key Duchenne care members
Trusting Duchenne specialists know their stuff
Using community insights in Duchenne care
Building collaboration in Duchenne care
See more videos
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