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Highlighting overlooked support in Duchenne care

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Collaborative care

Community insights

Trusting specialists

Regular huddles

PT frustration

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Riketa Smith is a certified medical assistant at Duke University Hospital and formerly served as the Pediatric Neuromuscular Program co-coordinator at Lenox Baker Children’s Hospital, where she worked with Duchenne families. She shares which Duchenne health team members are overlooked but should be given more attention.

Transcript

I feel like the team members that typically get overlooked are the dietitian or the social worker.

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Once the patient went through all their appointments, they would just be like, oh, we don’t need to see social work, we don’t need to see dietitian, you know, stuff like that. And at the end of the day, those are still important parts of the patient’s care.

More videos

Speaking up during Duchenne appointments
Encouraging open conversations about life with Duchenne
Finding trusted care and specialists for Duchenne
Colin Werth
Prioritizing good character in Duchenne healthcare
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