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    Advocacy partners

How to find a Duchenne specialist and certified care center

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Advocacy prep

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Riketa Smith, a certified medical assistant, shares resources families can use to identify Duchenne specialists and certified care centers.

Transcript

When a patient is looking for a Duchenne specialist, I think it’s really good to check out Parent Project Muscular Dystrophy website.

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Also, in the Muscular Dystrophy Association website, they have a list of all the Certified Duchenne Care Centers, as well as community pages.

They’re going to talk about clinics. They’re going to give you the raw, “This is who it is, these are the people there.” And it’s a good way to get a firsthand perspective of that clinic and the provider.

So those are I believe the best ways to find the best fit for you and your family.

More videos

Dealing with Duchenne physical therapy frustration
Insisting on seeing all key Duchenne care members
Trusting Duchenne specialists know their stuff
Using community insights in Duchenne care
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