Brenda Song, MD, is a neurologist who directs the UMass Duchenne Muscular Dystrophy Program, and she is a pioneer in organizing multidisciplinary care for Duchenne populations. She shares how she wishes patients would insist on meeting with key Duchenne care members more frequently.
Transcript
All collaborators for the care of patients of Duchenne muscular dystrophy — and in order to execute effectively the care plans and manage these problems — I see a need for a weekly free clinic meeting of the core specialties, which will really be the dietician, the PT, OT, podiatrist, together with neuromuscular specialist, pulmonologist, and ideally the endocrine doctor as well as the cardiologist.
Not many members will be able to make it, but I think the neuro-PT-rehab team is key and that enables one to plan well for each weekly clinic meeting, for the weekly clinic appointments — that nothing will be left out and all that needs to be done at each clinic visit will be executed.
