Alan Chaulet has Duchenne and lives in Lexington, Massachusetts. Diagnosed in 1993, he’s now 34 years old and has served in many advocacy positions. He shares the power of online communities in helping families connect, share specialist recommendations, and support one another through the challenges of living with Duchenne.
Transcript
I think social media. Just to ask people questions about, “What kind of specialist are you looking for? Do you want recommendations?”
I think our community is absolutely amazing on social media, and I think that’s amazing to all — and I think there’s some really good websites for seeing how people review doctors and clinics and things.
