People are always surprised at how faithful my family is. They think that because of my illness we would automatically throw our faith out the window, or that we would blame God for our circumstances. It’s quite the opposite actually. Growing up, I wouldn’t exactly say we were a family of…
You, Me and MD — Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Dear readers, This will be my last column for Muscular Dystrophy News. I want to thank you for following along with “You, Me, and MD” and for supporting me. You are the reason I write, and I hope I have made some difference in your…
Leah Leilani -- You, Me and MD
When I was little, I wore a medical ID bracelet because I had asthma. Twelve years later, I recently bought a new one to replace the old one, which I lost. These days, with the progression of my disease and new symptoms popping up every few years, I have many…
Leah Leilani Hello! My name is Leah, and 12 years ago, I was diagnosed with a rare form of muscular dystrophy called mitochondrial myopathy. If you don’t know, mitochondria are the energy machines of the cell. They transform your food into energy so you can live. When…
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